January 26th- KD Day

January 26th- Kawasaki Awareness Day

Some of you have seen my annual Kawasaki Disease Awareness Day posts before, please consider this a reminder.
Some of you lent support and encouragement as we went through the battle 3 years ago with my son Jacob, for that I am still truly grateful.
Some of you are new to NCKA and might have never heard of Kawasaki's Disease, so here's the short version: 

My boy was almost 3 years old, became sick, kind of like a bad cold.  Then a nasty fever, extreme lethargy, no appetite, a rash, and red eyes.  After 3 days we saw the pediatrician, were told it was a virus and give it another 2 days.  At day 5 we took him to the ER, were told he had a bladder infection and sent home with antibiotics.  At day 7 we were back in the ER and admitted.  At day 9 we were prepping for transport to UC Davis and the phrase 'bone marrow scans' entered the picture.  That was a shitty day.  At day 11, a new nurse came on shift, read his chart, talked to us, and within minutes recognized this as Atypical Kawasaki's Disease.  Never, ever had we heard of it.  A scan of his heart confirmed it, he was immediately given a treatment of IVIG, steroids, and high-dose aspirin, and by the next morning he was eating waffles and watching Spongebob. 

The first year post-diagnosis was rough, lots of side-effects to troubleshoot, but now he's ripping lips and shredding snow like a pro and nothing holds him back. 

Tight lines,
beenfishin & Jacob 

So glad your boy has been doing better!!!!!

And thanks for sharing this info with all of us!!

 

 

Sincerely,

Jim

Thanks for the post, Ben!

thx for the heads up!
Your kid looks like he's doing well - at Tunnel's?

Great eye, yep, Tunnel's indeed from our trip in August!

Thank you for the post. I'm glad everything turned out ok!

Glad your son is doing well.  Thanks for sharing Ben.

Thanks Ben