Prayers for StephKillsit

Right On!

Takin' any good new at this point, and stopped seizures is huge!

Thanks for the update Jeff!  You just made my day! 

Steph had an appt with another dr today at 3:00 pm I dont have any info yet... hoping for the best!

Yay!! Progress!

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She doesn't know it yet. But she's making a killing on her lam stock she bought.

Friday night update.
Results from leg muscle biopsy is negative. Back to sq1. Still baffling the best doctors in the world. They are going to see what happens after 48 more hrs without seizures. Then Adjust the pentobarbital and see what happens. Thank you again to all Of THE NCKA family for your continued support love and prayers for our friend Stephanie.

Damn.

Well a negative test result is still a test result and one more step toward figuring out how to help her fight this crap.  Hang in there Steph.

Any idea how many DRs are working on this? It's easy to play arm chair QB on something like this, but at the same time it's baffling with today technology they can't figure this out.
Im' guessing things like this happen more often than not and unless it directly affects you it's not something you would likely know about.
I can only imagine the love you will feel Steph when you read this thread. We will all be grinning ear to ear when you do read it.

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Steph,

Maya and I are sending good thoughts.  I learned about this while out of the country and even though I'm back now, I've been knocked on my butt by a nasty sinus infection and vicious cough.  I'm hoping when I'm able to visit, you will be able to tell me all about your beauty rest.

Nate

Good Morning Sunshine, we are all patiently waiting for you !    

Hey Steph!

I went surfcasting on Thursday morning at Rio Del Mar.  Didn't catch anything, but I think we saw a Great White breach.  I saw it was too big for a dolphin and too small for a whale.  About 1/4 mile out.  A buddy later talked to me and asked  "did you see that?"  he thought it was a shark also, which was my first impression when I saw it.

The sun was rising and clouds were scattered.  About a 5 knot offshore wind.  The waves felt so good on my bare legs.

Once you get outta that bed, come on down and we'll hit the beach, maybe get lucky and catch a striper or three!

Bushy

Thinking about you Steph!

I dove for stripers last night and got to pet a friendly leopard shark!!

It was so cool, you would have loved it.

Had a few beers after I got out of water at the beach watching the sunset right where we will do the PIF paddle in a few months...counting on you being there!!

 

Jim