Prayers for StephKillsit

Just an update on $$...

As of this AM we had raised $9,596 for Steph...

I just zapped sctrace $9,600 to give to Steph's dad on Monday to help with outstanding bills etc...

This is in addition to the $2,000 that we already gave to the family on 4/6/17.

So, through the CCK/Hobie Kayak Raffle and donations, NCKA and PIF have given $11,600.

 

I have attached screenshots showing the first transfer and this most recent one.

If anyone has any questions or concerns please just let me know.

Thank you!!!

 

Sincerely,

Jim

I visited Steph and family last night.  Nothing concrete yet.  The next step being taken is to take a tissue sample from her thigh to do a mitochondrial analysis.  There are several mitochondrial disorders that can result in epileptic seizures.

I shared with Neil the ongoing fundraising efforts here at NCKA, especially Rider's initiative to get CCK involved and put together a raffle, and the amount raised in just a few days.  He was very much surprised, but also so humble and appreciative.

Neil shared some stories with me, including the fact that as a teenager, Steph used to sneak out the window at nights to go cause trouble.  Hardly the angel we all know and love now!     Sorry Steph, but we could all use a chuckle right now, and I'm sure you're laughing with us on this one.

-Allen

Awesome just awesome !!!!

Mooch's sister, Rachel was in a coma for over a month, I remember her telling us.  I don't think they ever figured out what it was.  The human body is full of mysteries.

I can't wait to hear, over a campfire, what you were up to sneaking out of windows worrying your dad to death, Steph!

Thanks so much to the whole team that is showing so much love in so many ways
I was gonna report yesterday after my visit. But I couldn't spell mitochondria 
Thanks for reporting  Allen.
For The third time a neurologist comes to speak,I happen to be there. he says it's a Minor procedure. With less than 1/2% of problems. Will report again tomorrow

Jeff, Thanks for the updates.  Steph is a very special lady.  I can remember meeting her in the parking lot at HMB, probably 3 or 4 years ago.  She was looking for a safe place to car camp and was just beginning what would eventually become her love for kayak fishing.  It's just hard to believe such a vibrant person could become so sick, so suddenly.  I can't wait to hear an update from you indicating that she is on the mend.  She remains in my thoughts and like all of my brothers and sisters in NCKA, positive energy is being sent her way.

Martin

Thanks for the update Jeff, it sounds the next procedures has some promises keeping my fingers cross. Lets go steph you got this.

So sorry to hear of this just now. I will pray for you Steph. I never told you this, but in the early days of your saltwater fishing, seeing you charging out in rough conditions always made me smile, as I admired your courage and determination:smt006
Hang in there girl, we are thinking of you!
Mike

Prayers 4 steph and her family on a special day. Miss you girl.

A few updates from today via Trace.

$9600 from PIF, raised this week alone, was delivered to Stephanie's dad today.  Great job so far all, the raffle is not closed yet, so buy your tickets and support Steph!

Steph's seizures went down from a rate of 6-8 an hour (as reported by the EEG as they aren't outwardly visible) to 3 an hour.  As Trace puts it, "that's something at least".  Keep the hope, and keep channeling positive energy to our girl!

-Allen

Thanks for keeping us updated, Allen. You're a good friend. Still keeping fingers crossed.

Saw stephie today. No change other than the seizures have reduced to 3-6 /hr. So this is an improvement. We hope. Her facial twitches are more prominent and constant now. And she was running a slight fever but cooling down.  She is scheduled for surgery tomorrow for the muscle biopsy.   Tracey took the family  a check today from the pif foundation. Her family is so very grateful for the monies raised for her behalf. And is every so thankful to the entire NCKA community. We all continue to pray for her and that her doctors will find a cure of this strange and mysterious illness that is taking her from us. #stephkillsit

From Steph's father, Neil, via Trace.

Len, Corney, and I, would like to thank NCKA again for the very large donation that will be going to cover Stephanie's various expenses and to supplement our expenses as we keep her company here at UCSF.  Your generosity, concern and love for her is so greatly appreciated.  Regards to you all.

-Allen

Steph you're on my mind this morning. We need you to kick this things ass so you can be at GS with all the other scummies.

Let's go Steph KILL it!!!

#StephKillsit

Thinking of you buddy! Hang in there.