Prayers for StephKillsit

I have been out a few days, and got caught up.  Hang in there Steph! We are all pulling for you!

Just got caught up as well....so sorry to hear this! Wasn't this young lady just at her first Crab Fest in Jan?? Am I thinking of the same person?
My prayers are with her - glad she is at UCSF.

Sorry I got home late last night and was too drained to write this update.  Dennis Tracey and I visited the hospital in San Fran last night and Steph's condition is unchanged. Seizures are still happening when they reduce her meds. The new drug phenol barbatol is reducing the episodes but not stopping them.  they will  put a tracheotomy in and remove her breathing tube today.  The tube is only short term thing. To clarify a previous statement....it was the spinal tap fluid that showed that it was not NMDA, but the biopsy from her cyst is still being processed and we don't have the results yet. they would like to possibly try electroshock next to try to "reset" her nerve system.  There are some legality issues that need to be resolved first.
Your continued prayers for our NCKA  Sister Stephanie is so greatly appreciated. The outpouring of support...spiritually emotional and financial is rapid,immense and overwhelming. Her family so grateful. Thank you all so much.

Sorry I got home late last night and was too drained to write this update.  Dennis Tracey and I visited the hospital in San Fran last night and Steph's condition is unchanged. Seizures are still happening when they reduce her meds. The new drug phenol barbatol is reducing the episodes but not stopping them.  they will  put a tracheotomy in and remove her breathing tube today.  The tube is only short term thing. To clarify a previous statement....it was the spinal tap fluid that showed that it was not NMDA, but the biopsy from her cyst is still being processed and we don't have the results yet. they would like to possibly try electroshock next to try to "reset" her nerve system.  There are some legality issues that need to be resolved first.
Your continued prayers for our NCKA  Sister Stephanie is so greatly appreciated. The outpouring of support...spiritually emotional and financial is rapid,immense and overwhelming. Her family so grateful. Thank you all so much.

Thanks for the update Jeff.  Hang in there Steph.


-Kiel

Sorry I got home late last night and was too drained to write this update.  Dennis Tracey and I visited the hospital in San Fran last night and Steph's condition is unchanged. Seizures are still happening when they reduce her meds. The new drug phenol barbatol is reducing the episodes but not stopping them.  they will  put a tracheotomy in and remove her breathing tube today.  The tube is only short term thing. To clarify a previous statement....it was the spinal tap fluid that showed that it was not NMDA, but the biopsy from her cyst is still being processed and we don't have the results yet. they would like to possibly try electroshock next to try to "reset" her nerve system.  There are some legality issues that need to be resolved first.
Your continued prayers for our NCKA  Sister Stephanie is so greatly appreciated. The outpouring of support...spiritually emotional and financial is rapid,immense and overwhelming. Her family so grateful. Thank you all so much.

Man every time I see an update I keep expecting to read she's on her way to recovery. 

Keep fighting Steph you have so many people pulling for you. All my prayers are focused on you.

Phenobarbital is  a  class of drugs known as barbiturate anti-convulsants /hypnotics if  I remember right , works by controlling the abnormal electrical activity in the brain that go off during a seizure.  Man ...

Yeah like everyone else I want to read she is awake and and responding to family and friends..

Positive vibes and thoughts for Steph , her family and for all those treating her at UCSF

GO STEPH , FIGHT ON GIRL !!!


p.s. did they ever check her Mercury level  ?

Just got caught up as well....so sorry to hear this! Wasn't this young lady just at her first Crab Fest in Jan?? Am I thinking of the same person?
My prayers are with her - glad she is at UCSF.

Yes that was her. She has been a part of NCKA for a while now, just her first Crabfest.

FYI.  There is a gofundme page set up by Stephanie's brother.

https://www.gofundme.com/savestephanie925

Not meaning to take away from the fund raising efforts here.  Keep at it!  I'm just sharing that there are others out there trying to support Stephanie.

-Allen

FYI.  There is a gofundme page set up by Stephanie's brother.

https://www.gofundme.com/savestephanie925

Not meaning to take away from the fund raising efforts here.  Keep at it!  I'm just sharing that there are others out there trying to support Stephanie.

-Allen

Fantastic support. Great to see the outpouring of love for our Steph.
Looking forward to a miracle recovery and very good news soon.

Over $8,600 raised for Steph as of COB today via the kayak raffle and donations since Friday 4/7.

$12,979-$4310=$8,669

 

 

Sincerely,

Jim

Looking fwd to fishing with ya again steph...you've been on all of our collective minds in these past days..


I'm struggling to find the appropriate words...but just know that we all love you....

damn proud that our kayaking community is rallying for this gal...top notch all the organizers, truly...

Daviator

Short update.  Steph had a Tracheotomy yesterday, as she's been on a ventilator for quite some time now.  This will be easier on her.

She also was supposed to get yet another MRI last night.

Sorry, no updates on a diagnosis.   

Seems like there are a few people planning on visiting her today at different time.  I'll be heading up after work and will be there around 6:30 if anyone wants to join.

-Allen

thank Alan, yes, I plan to visit UCSF early afternoon then hit the cove with kayakjack and a few other for the Giants Game and fireworks after..  Ill update ya'll if I get anything new.. 
hope they find something soon!!

Thanks everyone for the updates. The donations are staggering. Very proud of the community. Great work to all, and my prayers are with Steph. Hard to see her in this shape.

 Stunned to hear about all of this ,,, 

      You got this Steph,

 If there ever was a Fighter,    

      Your it ,,,,