NorCal Kayak Anglers
General => General Talk => Topic started by: polepole on April 02, 2017, 06:44:16 PM
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I'm asking that you all pray for Steph. Or do whatever it is you do to channel positive energy her way.
Steph started having seizures last week. Here's the sequence of updates from iroelikethat. Will keep this post updated as new updates come in.
Saturday 4/1 morning.
As you may have previously read... my good friend and kayakfishing buddy Stephanie Killz'it Lopez suffered a seizure a few days ago and has been incommunicado. She is being monitored and more testing is being done. So little is known right now. I just please ask for your prayers for her and her family.
🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Today is opening day for rockfish lingcod and salmon here on the Pacific West Coast Monterey Day district, it was the day that she had been looking forward to for a long time, we were supposed to head to Pebble Beach this morning for her first time there but with little to no sleep for 2 nights I didn't really have the energy to wake up at 3am, drive 2 hours to participate in today's adventures without her. Besides My head is just not in it right now. I hope that those NCKA'ers who did make it out to the deepblue will catch one for Stephanie🎣🌊🐟
And on Saturday 4/1 afternoon.
Update: her status remains dire. She has had more seizures and is in ICU at the hospital. They have done 2 spinal taps. Still the cause of the seizures are unknown. The white blood cell count is high and it could be an infection of some sort they just don't know much yet. .
Please do continue to pray. 🙏🏼Thank you all for your support.
Sunday 4/2 update.
We went to go see Stephanie in the hospital today. it completely tore me up to see her this way. she had all kinds of tubes hooked up to her she had a machine breathing for her she was unconscious. And restrained so she would pull tubes out etc. The neurologist came and wanted to take her off the meds to see the reaction and she immediately began to twitch so they put her back on the same dosage to keep her under. They are thinking some sort of encephalopathy at this point. But they just don't know yet. The test results should be back tomorrow. When we will
Maybe know more. Her family is so nice and they are very thankful for all the support everyone has shown. Let's just continue to hope and pray that God will take care of her and bring her thru this terrible situation. 🙏🏼If you want to know more you can research it. But I found this doing a quick search. It's so sad someone as strong and outgoing as stephie is can be hit by such a tragedy. http://www.healthline.com/health/hepatic-encephalopathy...
Monday 4/3 update.
I just received word that she has encephalitis. And is getting heavy antibiotics. Otherwise no change in her status at this point more test are being done. The family appreciates the continued support. Keep praying. Thank you all
Monday evening 4/3 update.
Monday night update. Her condition is unchanged. And continues to have seizures ongoing. She will be moved tomorrow to either Stanford or UCSF where she can get better care. Specifically eeg monitoring full time.FUCKING KAISER!! although I have my own issues with Stanford as well you may remember sever years ago when they OD'ed me iwhile I was being monitored. It's totally the right move.. I'll know more tomorrow I'm sure. Dennis or Tracey may want to add more as they were there today. Thank you all again for the continued support and prayers..
Sorry friends I don't have any new information really. Her status is unchanged. They have ruled out meningitis Lyme and west Nile. She got an MRI yesterday and the found a spot on her brain that was not there before and may be the cause of the seizures. They tried again to reduce the meds but she began to seize again. They are still trying to find her a bed in a better more equip hospital. We are hopeful this will happen tonight. But that is what was said yesterday. Fucking Kaiser!
Please continue to pray for Stephie. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Thursday Update, last night she WAS finally moved to UCSF medical center 505 parnassus ave san fransicko..eight floor bed 3. they are doing another spinal tap and more test are being done. she is finally getting eeg monitoring and the family feels the care is much better and more responsive medical help. thanks all for your continued support and well wishes...the room is small I would not recommend flowers but a card or visit would be totally fine if you wanted to...
Just an update for you all...
Sctrace is in contact with Steph's family and working with them and UCSF case management so the parents can get a reasonable a place to stay instead of sleeping in their car...
They are very overwhelmed (obviously) and are very grateful for all of our thoughts and prayers and willingness to help out...
PIF will be doing what we can to help out.
We have 5K available right now, and I just sent over $2,000 of that to Sctrace to get into the family's hands to help them out..
Will post additional PIF details as we get them...
Sincerely,
Jim
Thanks big jim sctrace (aka deltatrace aka skiptrace) A hulls and all the Ncka family. Your continued supports and prayers for the fallen members of our community never has ceased to amaze me. It's what makes me so proud to call you all my friends. I will be making a stop to visit steph tomorrow in the morning on the way to berry. I'll read her all the comments. Gonna shoot for around 10:00 am. If anyone wants to meet up. Several have expressed interest...the more the merrier.
What I can tell you regarding her condition is that there is NO CHANGE.. More spinal taps more test. The EEG is showing she continues to have seizures not visible to the naked eye. Apparently Lots of Drs are looking into it. Instead of one idiot dr. Thanks again for everything from everyone!!!!
The doctors here at UCSF have a clue. Steph will be getting a biopsy done today to examine a growth on her ovary discovered with an ultrasound. The theory is that she has Anti-NMDA Receptor Encephalitis, often caused by a benign ovarian tumor.
http://www.antinmdafoundation.org/the-illness/what-is-anti-nmda-receptor-encephalitis/
Fingers crossed that they are heading towards a diagnosis, because once they know what it is, they can treat it.
Fight it, Steph, fight it!
-Allen
NCKA Ohana,
We were at the hospital with Allen (polepole), Marcos (angelfish)/Tracey (sctrace)/Aaron (pondpoacher) visiting Stephanie (stephkillsit) and family. Super happy that Steph is at UCSF- great doc/ facility/ city. Jeff (iroelikethat) visited earlier in the AM.
When we left Steph at 4 pm today- she was going in for surgery to biopsy a 'tumor' in her right ovary that they suspect is causing her issues. The name of the possible cause is NMDA Encephalitis.
Below is a message from Niel (Steph's Dad). He is super humble/ unpretentious/ down to earth...beyond appreciative...
My wife and I would like to sincerely thank the NCKA for the very generous donation that Tracey handed to me today. We are amazed that so many of Stephanie's friends have so much love and concern for her.
I am sure that our dear daughter would very much appreciate all your thoughts, prayers, visits, and this donation. We will use it to supplement the expenses of staying with her while she's here in the hospital.
Len and I would love to meet you all one day...hopefully with a healthy Stephanie to introduce us to you.
Again, thank you all so much for all the support for our NCKA Ohana...will keep you posted!
Team Steph!
dshu- aka Old#7
From Steph's father via sctrace.
We are beside Steph now. The surgery went well according to the nurse. There are still slight seizures being seen by the EEG, but if the tumor was the cause, they should go away with the help of med called immunoglobulin
Continued prayers and positive energy!
-Allen
Hi NCKA Fam!
We will be sure to update you all as soon as we know more. No major change since Friday but the tumor is removed and the docs don't expect the immunoglobulin to kick in until Tues/Wed.
Thank you all for the continued support and generosity. I can only say the family is overwhelmed by how many friends Stephanie has and the incredible outreach.
Regards,
Trace (sctrace)
I just heard from Trace. A bit of a step back today. :smt010
We were told last night that a test for NMDA came back negative, but meds for that will continue. They are scheduling a PET scan today to scan her whole body for tumors or growths. She continues to have seizures and are trying to adjust the dosages of the meds for that.
-Allen
Yersterday's update via Trace via Neil.
The PET scan did not show anything unusual. They did give her a new drug that seems to be decreasing her seizures.
-Allen
Sorry I got home late last night and was too drained to write this update. Dennis Tracey and I visited the hospital in San Fran last night and Steph's condition is unchanged. Seizures are still happening when they reduce her meds. The new drug phenol barbatol is reducing the episodes but not stopping them. they will put a tracheotomy in and remove her breathing tube today. The tube is only short term thing. To clarify a previous statement....it was the spinal tap fluid that showed that it was not NMDA, but the biopsy from her cyst is still being processed and we don't have the results yet. they would like to possibly try electroshock next to try to "reset" her nerve system. There are some legality issues that need to be resolved first.
Your continued prayers for our NCKA Sister Stephanie is so greatly appreciated. The outpouring of support...spiritually emotional and financial is rapid,immense and overwhelming. Her family so grateful. Thank you all so much.
Short update. Steph had a Tracheotomy yesterday, as she's been on a ventilator for quite some time now. This will be easier on her.
She also was supposed to get yet another MRI last night.
Sorry, no updates on a diagnosis. :smt010
Seems like there are a few people planning on visiting her today at different time. I'll be heading up after work and will be there around 6:30 if anyone wants to join.
-Allen
I visited Steph and family last night. Nothing concrete yet. The next step being taken is to take a tissue sample from her thigh to do a mitochondrial analysis. There are several mitochondrial disorders that can result in epileptic seizures.
I shared with Neil the ongoing fundraising efforts here at NCKA, especially Rider's initiative to get CCK involved and put together a raffle, and the amount raised in just a few days. He was very much surprised, but also so humble and appreciative.
Neil shared some stories with me, including the fact that as a teenager, Steph used to sneak out the window at nights to go cause trouble. Hardly the angel we all know and love now! :smt005 Sorry Steph, but we could all use a chuckle right now, and I'm sure you're laughing with us on this one.
-Allen
A few updates from today via Trace.
$9600 from PIF, raised this week alone, was delivered to Stephanie's dad today. Great job so far all, the raffle is not closed yet, so buy your tickets and support Steph!
Steph's seizures went down from a rate of 6-8 an hour (as reported by the EEG as they aren't outwardly visible) to 3 an hour. As Trace puts it, "that's something at least". Keep the hope, and keep channeling positive energy to our girl!
-Allen
Saw stephie today. No change other than the seizures have reduced to 3-6 /hr. So this is an improvement. We hope. Her facial twitches are more prominent and constant now. And she was running a slight fever but cooling down. She is scheduled for surgery tomorrow for the muscle biopsy. Tracey took the family a check today from the pif foundation. Her family is so very grateful for the monies raised for her behalf. And is every so thankful to the entire NCKA community. We all continue to pray for her and that her doctors will find a cure of this strange and mysterious illness that is taking her from us. #stephkillsit
Thursday Update: Reporting in that Stephanie's Biopsy on her leg muscle went well and the results will take longer than we all want... they are treating her with a mitochondrial cocktail in case it comes back positive.. however the seizures have increased. I've not been told by how much. the lowest we've seen was 3 per hour... thank you all for your continued prayers, support and generosity.
From Neil via Trace.
Steph was just given a new drug called Pentobarbital, and it has stopped her seizures. The EEG shows no signs of seizures. This is not a cur,
but it's supposed to give her a break, and hopefully they don't come back. In the meantime she's still on antibiotics and various other meds.
Keep the good thoughts coming everyone.
-Allen
Thursday Evening update: the Doctors at UCSF have changed her meds to Phenobarbital and the seizures have stopped!!!!!!!!!!
This is not a cure but will give her a break and they are hoping this will allow her nerverous system to "reset" the Biopsy and other text results are going to take another week or maybe. Lets stay positive and continue to pray. I will give another update as soon as I know anything.....as always THANKS TO ALL!
From Steph's brother Cornie, via Trace.
they suppressed the seizures for now under the Pentobarbital. In 48 hours if it fails then they have to start ECT. No luck yet with the diagnosis yet. They are doing a microbial test now because the biopsy test came up negative. One again I'd like to thank you for helping us out and getting everyone to support us through this all. Your love and compassion keeps us strong.
-Allen
spoke with Stephie's dad today.. they have taken her off the pentabarbatol. and are making adjustments still to the medication.. but the seizures have seem to have been under controlled now.... not sure what is next as they still don't know the cause.... thanks for your continued support and prayers for Stephanie!
The seizures are back. :smt010
-Allen
yes this is truly sad news she has some new doctors.... so let hope they can find something the other have missed... Quinn and Sara and I went to see her on
Saturday before the Giants Game... we wanted to get some Elmer Fudd "were hunting wabbits'' hats like the one stephie has...
she had begun to show signs of slight facial twitching, then she semi yawned.. we thought that was a good sign... :smt010
From Cornie (Steph's brother) via Trace.
Hey so the nurse says she's opening her eyes and they respond to movement so not sure if Steph can notice us or what not but supposedly she's supposed to be in a deep state of unconsciousness. We're hoping it's a sign. Other than that she is showing brain activity. She is still twitching at the mouth shr is still seizing but it is on intervals. The strength of her seizures seem to have lessened from our point of view but we don't know what's happening in her brain. The doctors say the seizures are focal and localised on the temporal lobe. We have a certified from the judge to go ahead and grant the doctors permission to conduct the electro shock therapy to reboot her brain in hopes it can generate a seizure to stop her seizure. Sounds weird I know but in clinical trials it has been proven to work. So for now we are just waiting
-Allen
Friends, I'm not sure if I have correctly stated Stephanie's condition. It's being called "Refractory status epilepticus" the treatment that is being proposed next is ECT Electroconvulsive therapy, if you would like to know more about it and some case studies I have found this which has mixed results. thank you all for your continued prayers and support for Stephie.
http://www.sciencedirect.com/science/article/pii/S1059131112001872 (http://www.sciencedirect.com/science/article/pii/S1059131112001872)
They have moved Stephie to room 5 on the 11th floor due to a leak
They are meeting with the ect dr tomorrow. I'll let everyone know more when I know it. Thanks again to all
I visited Steph yesterday and things are about the same. Her eyes were open and her lips, brow and chin all had movements. She continues to have seizures as they have decreased her medication in preparation for the ECT procedure which will happen either today, tomorrow, or Wednesday. If you believe in collective prayer, or collective energy as a healing source, now is the time to give Steph and her family your thoughts. Her father showed me this picture while I was there and like most of us, Steph had an affinity for fishing at a very young age.
I Went to see Stephie after work. Took 2 hr but it was so worth it Steph responded to me tonight !!!!!!!!!
I couldn't believe it. !!! I walked in and she heard me and got all excited. Alarms started beepin for Her respiratory and heart rate threshold and temp went up a tick. Her eyes were open. Kari the nurse said she has been doing this the last couple days. Diskinesa is normal when coming off the pheno and pento. Versed Etc but The she and I leaned over her and said "Steph! close you eyes really really hard if you can hear us." AND SHE DID!! For several seconds. I said steph. Squeeze my hand if you can hear me.....AND SHE DID.. I was floored. I told her everyone is praying for her and not give up. Later I tried again and I got no response. I But I'm telling you. SHE IS IN THERE FIGHTING. They will likely proceed with ect Saturday. It may take a few treatment so keep praying. Thank you ALL 🙏🏼
On my last visit, I walked over to her and quietly started reminiscing about our event at crab fest where she took a wave sideways and dumped her gear. Jeff and I grabbed her gear and got her squared away. She raised her self up slightly and looked as if she was trying to speak. I know that she heard me and I know that she remembered. I hope the upcoming Peocedure will give us the results that we all pray for.
Stephanie's procedure went as planned there are no expected results as of today they plan to do it again tomorrow and again on Monday if required. Her 34th birthday of course is on Tuesday let's hope and pray that we have some results by then. Thanks again everyone for all your support and prayers🙏🏼
I got word today that Stephanie's doctors are very happy with the way the treatments are going they are seeing far fewer seizures now. they will continue the electroshock treatments tomorrow and daily as necessary until further improvement is seen. Tomorrow is her 34th birthday. Thanks for all again so much for your concerns your prayers and your wishes for her well being.
I went to see Stephie today for her birthday.. She got her 4th ect treatment this morning. When I was there, about every 10 mins, She seemed to be somewhat awakening for just a few seconds. her eyes would open slowly. And I'd say happy birthday. I'm very sure I got a couple smiles and even a semi chuckle albeit ever so brief before she faded back out. So very hard to see my friend this way. So thankful some progress is being made.
I took the nurses some cupcakes so they could celebrate too. They are all so nice to her and treat her very welll. ( cute ones too!!) The drs are pleased that the ect is progressively "unlocking" the parts of her brain so that now the drugs can get in and suppress the seizures. She is still having them but they are more organized now. She has been having more prominent facial tweets. Which is also expected. She will have another ect treatment tomorrow. After that, the judge has to give an extension to the order for more to be done. As always Thanks for your prayers for Stephanie.
Stephie got her 5th treatment today... they are going to switch up her meds now and make adjustments to hopefully get it into areas of her brain that it couldn't get to before...
Also I want to mention that many of the updates I relay to you come from Tracy who has been just as instrumental if not more that I have been in getting information and disseminating it. Thank you Tracy (SCTRACE) for sharing the burden of this often depressing news.... one day we will have great news to share til then.. ... just keep praying people... as always... Thank you
I got a message from Steph's dad yesterday. They wheeled her around on her first "stroll" through ICU in 44 days. She is waking up, but still having seizures.
-Allen
5/21: I am very happy to report that Stephanie is doing so much better today she has come out of the coma and the seizures have stopped as of 9:15 am today. She is getting her meds reduced now. And there were no other drugs added. she wants to speak so badly and tried but she doesn't have a voice box really and has the trachea still and the meds are still interrupting her motor skills. She has a chart of words that her she can point to but she isn't quite there yet. Her versed is at 23 now and should be 20 by morning. So more time is the next step. But it appears the electroshock therapy has worked. She may get a 6th treatment. They are not sure yet. Thank you to all my friends that have prayed for and shown support. Please do not stop. It's working !
She was so excited to see the Worlds biggest get well card (10'x2.5') and a huge and beautifully polished red abalone shell from all of her friends and supporters from SHELTER COVE. SHULAND , NOR CAL KAYAK ANGLERS , Lost coast kayak Anglers, North west kayak anglers. And all up and down The west coast and all of shuland I will post pic tomorrow it was a long day ❤️🙏🏼❤️🙏🏼😴
I got an Update yesterday from SkipTrace :smt005 who visited with Stephie after a long day of work... It sounds about the same as Sunday but with small improvements each day! Trace told here to get up, its time to fish.. :fishing2 :fishing1 and she got excited... :bounce:. :smt007 keep up the positive vibe friends! :smt006 thanks your all your love and support!
If anyone is interested in joining....I plan to visit Friday around 2pm for a little while before the SF Giants/kayakbbq/Mc Covey Cove/ATT Park/fireworks show.... Shenanigans on the water!
From Stephanie's Dad.:Today, Steph was fitted with a speaking valve to her trach by a speech therapist. We were amazed to hear her repeat sounds, and to say her first word...which was "no". She is able to follow commands and to hum. She was asked what kind of music she wanted to listen to, and she said. " Blink 182". The therapist repeated Blink 182 and Steph nodded several times. Her nurse looked it up on the computer and played it. Steph let out a big smile and seemed to mouth the lyrics to the song as it was playing.I h
She is coming back! I was able to visit for a while today. She was definitely excited. She was trying so hard to talk that her mother, Len and I had to ask her to relax. Talking can't be easy with that thing in her throat. The sparkle she gets and her happy smile are definitely back Her speech patterns are repetitive. She is grasping concepts and holding on to them hard. She said on her own that it seems like its been a bad dream. I mentioned the other people that have visited. She said, I like Tracy SC. I like Jeff. Later in the conversation, she had trouble remembering Jeff. Then when Tracy was mentioned, her mind made the connection and her memory and fondness for Jeff returned. This is how it should be. We all trigger memory via associations. I mentioned where I was going fishing this weekend. She definitely knew Pescadero and Bean and they brought her special smile out. She said, I Love the Bean. I told her that when things clear up more, she is going to be mad she missed Turkey season. She definitely understood that. she said, I love hunting.
Her mother likes to take pictures so I posed for this one.
Saw Stephanie today she's doing much better. her voice is improving quite a bit. She was coherent responsive talkative alert. and her pronunciation is really good thru her voice thingy in her trachea she was starting to kick her feet more. They said she stood earlier in the day. She is off all the seizure meds. Now and is in withdraw so to speak. She had her first real meal. And she ate that all up!! Still she's having trouble with her memory as far as who people are and things like that. She asked if I was single and where I live and what I do. She was very excited know that I am single and design robots. And live in San Jose. She noted that "single... that's important. The rest. Meh." Lmao later she said San Jose is far! ( glad she gets that) 😂😂
she forgot that she is my fishing buddy 🎣🚣🏼♀️🤦♂️but she knows she has 2 kayaks. ❤️She doesn't remember me being there before. 😢Thinks I am the first to come see her. I told her the other people that visited and she didn't remember. 😢she became so concerned about the numbers on the monitor they had to shut it off. She is still scared but I told her she I told her how proud we all are and NCKA too for how she fought to be here with us and she said i don't Remember but I love Ncka. !! She has a hellova grip now. We just need to get the rest of her moving. He nurses say she is doing as expected she could be out of ICU next week ? Maybe? Thanks again for everyone's prayers and thought for stephkillsit
Stephie is out of ICU! 🙏🏼❤️🙏🏼❤️🙏🏼❤️🙏🏼❤️ She is doing better every day. Thanks for all your support thru these times. She has a ways to go but we are all hopeful for a full recovery in due time. Stephkillsit! 👍
ATTEN... STEPHIE IS NOW IN ROOM L828 AS SHE IS NO LONGER IN "ACUTE CARE" WOO HOO!
I got my birthday wish yesterday. She remembered me!!!! Woo hoo!!! :smt044
She sat in a chair with help but she ate all by herself. So happy with her progress. Best birthday ever!
Stephanie is asking for people to come and visit! She will not be at UCSF (505 Parnasus, SF CA room L868)much longer, they will soon more her to kaiser in Vallejo for her PT.
She is still suffering bouts of delusions and memory loss.. (not knowing why she is there and what has happened to her.. she still worries about dying and is scared... This is short lived as she then gets happy and is very talkative... she still has a very hard time remembering a lot of things... like..what "NCKA" is and what color my car is... but she was but she still remembers she has 2 kayaks and cant wait to be hobie-ing again... she also remembered that I live in San Jose and that is very far...
lmao
:smt006 HEY Y'ALL!
STEPHANIE WILL BE MOVED TO TODAY TO VALLEJO!!
THAT RIGHT I SAID....
"VALLEJO BITCH, THE 707 HOE, YOU KNOW THE V-TOWN V-TOWN" :smt044
:smt006 HEY GUYS! STEPHANIE HAS BEEN MOVED TO VALLEJO. :smt044
SHE IS IN ROOM H3027 GO AND SEE HER!
975 Sereno Drive
Vallejo, CA 94589
Phone number (707) 651-1000
INITIAL REPORTS ARE THAT IS GHETTO AS FUCK (MORE SO THAN SF :jawdrop)?....
SO ANYWAY DON'T BE LEAVING SHIT IN YOUR CARS.... :smt013 :smt066 :smt067 :smt068 :smt070 :smt071
Hi All!
Wanted to let you know I (and Pondpoacher) have been visiting Steph at the rehab/hospital in Vallejo where she will be for at least 2 weeks. She is awake, talking without the trach, eating by herself (semi-assisted for opening packages, grabbing items), with a little stutter/slurred speech. She is not mobile/not able to stand up, but getting regular physical and speech therapy.
Visitors are super welcome! I know it’s a haul for many to Vallejo but Saturday or Sunday mornings are perfect commute hours! Generally speaking, mid week, she has physical therapy throughout the day, but free after 3pm, eats around 6pm, and sleeps around 9pm.
Kaiser Vallejo
975 Sereno Dr
Vallejo, CA 94589
Rm H3027
(Main Hospital Bldg, 3rd Floor)
She doesn’t recognize everyone at first, but if she has seen you recently, she remembers that, and also, if she has seen pictures of you recently, she may remember you when you visit. It seems good to just let her talk, not ask too many questions (she doesn’t need to be ‘quizzed’) but telling her a story about a recent fishing experience, or a story of a trip you had with her is cool. Showing her a few pictures and asking her “Do you know remember who that is?” or “Do you remember what kind of fish this is?” seemed to trigger her memory a bit. Just visiting and talking to her is great! You will see
She doesn’t remember too much about her life except for what her parents and friends have told her since she has been awake, but she doesn’t seem too frustrated in this regard. She says she is a vegetarian and a germaphobe now, but is still figuring out to what level. We reminded her of her freezer and she said she would give all of the meat away, and thinks she may be all CPR now with fish. So it’s these things, while entertaining, we don’t want to be like “NO, that’s not you!” or “That’s crazy talk!” The docs say her memory should get better with time (to what degree-TBD).
Her parents/brother continue to be by her side almost 24hrs/day, sometimes sleeping at the facility. Her health insurance coverage, so far, has been good. I spoke with Neil, her Dad, just this past Sunday and they do not want any additional funds at this time with so much still unknown, but are very appreciative that we keep asking. Her brother also has a GoFundMe account that has raised a bunch of money for the family as well.
Thanks everyone!
Tracey (sctrace)
We should all keep going to visit her, it keeps her spirit up and makes her very happy and you will have fun, Craig you should go soon because as far as she remembers she likes Obama. Bring some pictures, she remembered seeing my drysuit colors, when i came in the room she look at me and said " i remember your face, what's your name?" She did not remember untill i said scubaluis then she never forgot that. I showed some pics from my phone and talk for about an hour.
Sent from my SM-G920P using Tapatalk
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Thanks for the update , I was going to PM you to see if you heard more.
Steph is young ,strong and full of life , but I`m sure she could use our support..Like Allen wrote whatever you do to channel good things in life ,Steph could use it now !!!!
Thinking of you Steph ,sending Good Thoughts and Positive Waves !!!!
:smt002 :smt002 :smt002 :smt002
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Sorry to hear the news. Very sad. Stephanie is in our thoughts and prayers.🙏
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God be with you, Steph. I pray for your speedy recovery.
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Hang in there Steph!!!! :smt001
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So sorry to hear this.
I am saying a prayer right now that all the unknowns are figured out and the best Doctors are put on the case so she can be treated properly without delay.
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Praying...
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So sorry to hear this news.
Sending positive vibes to a most positive woman.
Here's to a speedy recovery and hope to see your smiling face real soon.
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How frightening. Sending positive thoughts and prayers for healing.
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This is truly shocking news! :smt010
Get well Steph....hope to see that smile again soon.
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Best wishes for her recovery.
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:smt010 sending prayer for a quick recovery and hopefully find out the cause and resolve it. Hang in there Steph!!
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Truly shocking. Hoping that this is resolved sooner than soon.
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This truly breaks my Heart to hear. :smt010 For the few times I have seen her at events and talked to her.... She is so positive and outgoing. I pray for her speedy recovery and Peace for her Family! Please update us and thanks for the post. She is an NCKA :angel13:
Alex
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go go go and super positive
yup. that's about it. Tomorrow 9am. Everyone. Group effort think of Stephanie and her getting better. think really hard. Let's do it together. Put it on your phone alarm right now to remind you.
Bushy
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Best wishes for Steph - we love you!
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A Very positive and a can do attitude woman. I will pray for her!
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It breaks my heart hearing news like this. Sending positive thoughts and prayers. Knowing her she is fighter she will overcome this.
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Good thoughts and best wishes.
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Pulling for you. I see a speedy recovery in the very near future.
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Praying for you Steph! Stay strong
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Get well soon Steph! You have the support of the whole NCKA community.
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we are continuing are prayers for your recovery Stephanie, hang in there Lady!
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Aw man... Thoughts and prayers until you're back on the water, Steph.
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Terrible news! I hope they figure out what's going on and she has a speedy recovery!
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Thank you all for your kind words support and well wishes for Steffi I will pass them along and try to keep you updated as best I can. sorry to have to bring you all this sad new. 😢
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A shocking news. I pray and hope for a speedy recovery.
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wow very shocking. my prayers go out to her. hoping for a fast recovery.
Sent from my SM-G930V using Tapatalk
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Prayers of wisdom for your Dr.s , healing and full recovery for you Stephanie
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Hoping for the best for Steph. Love and prayers to her and her family.
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Hoping for a speedy recovery, I will keep you in my prayer Steph!
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Not what I wanted to read the first thing in the morning. :smt010
You can beat this Steph!!!!!!!!!!!!!
Well wishes and prayers sent to you and your family.
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Prayers are with you Steph!!! Get well soon!
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Sad news for sure.
Hope you get well soon. Good thoughts and prayers going out to Steph.
TW
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Whatever the heck is going on, you got this, Steph!
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Praying for you Steph. Get well soon and let's go fishing.
-Kiel
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sending super-powerful brain healing energy your way Steph.We are all pulling hard for you. You are an integral part of us and we love you. Get well sista
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:smt010.... Thinking of you buddy! You got this pull thru like the champ you are!
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I will get our entire high school to pray for her today!
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Daily prayer for Steph. Thinkin bout you Girl.
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May you have a speedy recovery, Steph. Thoughts and prayers to you from Oakland.
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Sending my prayers Steph
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Praying and Hoping for the best for you Steph
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My thoughts and prayers are with you and you family Steph. You got this.
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All my prayers and good vibes to help turn the tide on what ails you!
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Keeping Steph and her family in our prayers.
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Sending good thoughts her way. Wishing for a speedy recovery. She is one of of us, a part of the NCKA family.
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go go go and super positive
yup. that's about it. Tomorrow 9am. Everyone. Group effort think of Stephanie and her getting better. think really hard. Let's do it together. Put it on your phone alarm right now to remind you.
Bushy
It' 8:58 ........lets do this :smt055
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Hang in there Steph! You got nothing but love pouring in from all of us. Stay strong!!
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Been thinking about you since I heard the news. Good thoughts heading your way.
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Positive vibes sending out -- wishing you the strength to pull through this quickly.
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Praying for you Steph...you are such an amazing beautiful awesome strong person....I know you can pull through this...
Goes without even saying that whatever PIF or any of us can do to help just let us know....
Sending all of my love and positive energy to you and your family!!!
Sincerely,
Jim
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Good luck, Steph! We are all pulling for you!
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oh man that's horrible. wishing you a speedy recovery. be strong and hang in there steph!
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Hoping for a full recovery. Be strong and as positive as possible.
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pulling for you Steph. Hang in there.
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I just received word that she has encephalitis. And is getting heavy antibiotics. Otherwise no change in her status at this point more test are being done. The family appreciates the continued support. Keep praying. Thank you all.
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Hope she bounces right back! Prayers her way! Get better soon!!!
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Wish you quickly fight through and recover, Steph!
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Pulling for you Steph. Hang in there.
You got this.
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Sending healing vibes Steph's way. Hope they're able to figure out what's wrong and give her the help she needs!
Sent from my iPhone using Tapatalk
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We are thinking about you, Steph. I hope we receive some good news soon.
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Wish you the best.
-bmb
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We're all rooting for you Steph. We know you're a fighter so lets get through this!
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Wishing you a speedy recovery Steph.
Sent from my iPhone using Tapatalk
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Glad they figured it out.
Now she can get the correct treatment and be back in no time.
Looking forward to some more reports from ya Steph.
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Sorry to hear this, so many health problems for many families, wishing you well from our family to yours 💖
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Sending love, strength and luck for a good outcome.
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I wish I could give her a Jell-O shot and make it all better :smt012
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I wish I could give her a Jell-O shot and make it all better :smt012
Fixed the pic for you. :smt006
-Allen
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Prayers and positive vibes coming your way from Richmond.
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Come on Steph! You can beat this! Praying for you!
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Wishing speedy recovery!
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Damn, Steph, this sucks. I got nothing but love & respect for you. We're all pulling for you. Hundreds of people who care deeply about you. I pray that our collective positive vibes will help.
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I'm keeping the first page as up-to-date as I am aware of, just so people don't have to go searching through the rest of the posts.
-Allen
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Sending love and positive healing thoughts your way Stephanie. Hoping you get well soon and can get back on the water in good health <3
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I'm keeping the first page as up-to-date as I am aware of, just so people don't have to go searching through the rest of the posts.
-Allen
Thanks Allen. I look forward to the day we get to see that great smile of her's again. :smt001
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Get healthy my friend, prayers n thoughts are with u!!
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We are all praying for speedy recovery for you Steph. Get well soon sister. :smt006
Jedmo
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Monday evening update from iroelikethat.
Monday night update. Her condition is unchanged. And continues to have seizures ongoing. She will be moved tomorrow to either Stanford or UCSF where she can get better care. Specifically eeg monitoring full time.FUCKING KAISER!! although I have my own issues with Stanford as well you may remember sever years ago when they OD'ed me iwhile I was being monitored. It's totally the right move.. I'll know more tomorrow I'm sure. Dennis or Tracey may want to add more as they were there today. Thank you all again for the continued support and prayers..
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Sending good vibes to her right now!!!
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Hoping and praying for ya, you are a sweet Lady!
Sent from my iPhone using Tapatalk
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We're still thinking about her and sending positive vibes to her & her family.
Thank you for the updates.
Sent from my iPhone using Tapatalk
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we`re all pulling for you Steph !!!
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Hang in there Steph and get well soon !!!!!!!!!!!
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OMG,,, Just read this. :smt010 My thoughts and prayers are with you Steph..
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I'm keeping the first page as up-to-date as I am aware of, just so people don't have to go searching through the rest of the posts.
-Allen
You rock Allen
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Thanks for the update.
Hang tough Steph.
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Thank you polepole. And all. No news yet today. 😟
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Wishing you the best girl!
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Prayers for you Steph for a speedy recovery from down south.
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Any updates???
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Any updates???
No. :smt009
-Allen
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Any updates???
No. :smt009
-Allen
Fuck!!
Praying for you Steph!!!!!
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Ive been hoping that next time I read an update its good news! :smt010 . Come on Steph you got this! Rock fish opener on the 15th lets go girl! I will praying for you. Positive vibes coming your way!
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Wow shocker!! I've never had the chance to meet her but by reading all her posts she seems like an animal. I know she's a strong willed young lady. I have no doubt she will pull through this. Let me know where the party after her recovery will be. Cmon steph be strong!!
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Hoping for some good news soon! Positive thoughts and well wishes continuing your way.
Martin
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Sorry friends I don't have any new information really. Her status is unchanged. They have ruled out meningitis Lyme and west Nile. She got an MRI yesterday and the found a spot on her brain that was not there before and may be the cause of the seizures. They tried again to reduce the meds but she began to seize again. They are still trying to find her a bed in a better more equip hospital. We are hopeful this will happen tonight. But that is what was said yesterday. Fucking Kaiser!
Please continue to pray for Stephie. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
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Sorry friends I don't have any new information really. Her status is unchanged. They have ruled out meningitis Lyme and west Nile. She got an MRI yesterday and the found a spot on her brain that was not there before and may be the cause of the seizures. They tried again to reduce the meds but she began to seize again. They are still trying to find her a bed in a better more equip hospital. We are hopeful this will happen tonight. But that is what was said yesterday. Fucking Kaiser!
Please continue to pray for Stephie. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Thanks for the update. Whenever I see a new post, before I open it I am already hoping that it will read she has woken up . I look forward to that happening very soon. Prayers daily for ya Steph !
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:smt075 beat this Steph !!!!
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Sending healing vibes out.. Get well Steph!
-ML
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I went down Sherman island today and soaked bait where ol Steph and I met up when I was recovering from my last surgery. Small fish but big vibes. Get well and come show me what I am doing wrong! :smt006
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Passing along good thoughts. We need people like her in our lives. She is an inspiring person.
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Thursday Update, last night she WAS finally moved to UCSF medical center 505 parnassus ave san fransicko..eight floor bed 3. they are doing another spinal tap and more test are being done. she is finally getting eeg monitoring and the family feels the care is much better and more responsive medical help. thanks all for your continued support and well wishes...the room is small I would not recommend flowers but a card or visit would be totally fine if you wanted to...
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Still in my prayers Steph.
Thanks jeff for keeping us updated.
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Thank you for the update Jeff...
Hang in there Steph!! I know you are gonna get better soon!!!!
Sincerely,
Jim
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Thanks for the updates Jeff. Still in shock this happened to Steph...
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Thanks for keeping us all informed. Still praying.
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Thanks for the update ..UCSF good place, they did a great job on my kid You Go Steph !!!!
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Positive Thoughts, Prayers, and Good Vibes continue. UCSF is a great facility. Thanks Jeff for updates.
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Prayers for you Stephanie. I know she'll have better care than they gave my dad. They killed him through poor surgical skills. God will care for you girl. No matter what.
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Just an update for you all...
Sctrace is in contact with Steph's family and working with them and UCSF case management so the parents can get a reasonable a place to stay instead of sleeping in their car...
They are very overwhelmed (obviously) and are very grateful for all of our thoughts and prayers and willingness to help out...
PIF will be doing what we can to help out.
We have 5K available right now, and I just sent over $2,000 of that to Sctrace to get into the family's hands to help them out..
Will post additional PIF details as we get them...
Sincerely,
Jim
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Good Stuff Big Jim !!!!
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Our continued thoughts and prayers are with my buddie Stephanie. :smt010
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Just an update for you all...
Sctrace is in contact with Steph's family and working with them and UCSF case management so the parents can get a reasonable a place to stay instead of sleeping in their car...
They are very overwhelmed (obviously) and are very grateful for all of our thoughts and prayers and willingness to help out...
PIF will be doing what we can to help out.
We have 5K available right now, and I just sent over $2,000 of that to Sctrace to get into the family's hands to help them out..
Will post additional PIF details as we get them...
Sincerely,
Jim
Glad to hear Pif was able to help Steph's family. Thanks to all that contribute and a big thanks to you Jim and all of your time you volunteer to keep things in order ! Your an Angel to. :smt008 :smt002
Can hardly wait to rock fish with you Steph ! :smt052
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Thanks for the updates Jeff. Thanks A-Hulls for fast action to help.
Craig, what the hell kind of comment was that? Real encouraging to have someone pipe off "they killed my dad because of bad surgical skills." Real classy dude. Her life is in the balance.
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Please if anyone has any issues with anything anyone says on this thread, please take it offline via a PM etc. This thread is for Steph not our personal imperfections
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Just an update for you all...
Sctrace is in contact with Steph's family and working with them and UCSF case management so the parents can get a reasonable a place to stay instead of sleeping in their car...
They are very overwhelmed (obviously) and are very grateful for all of our thoughts and prayers and willingness to help out...
PIF will be doing what we can to help out.
We have 5K available right now, and I just sent over $2,000 of that to Sctrace to get into the family's hands to help them out..
Will post additional PIF details as we get them...
Sincerely,
Jim
That's awesome Job guys PIF and Ahulls are amazing for what they do to those who are in need. I can help booking hotel since I get discounts with breakfast. Please let me know. PM me. Thanks
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Thanks big jim sctrace (aka deltatrace aka skiptrace) A hulls and all the Ncka family. Your continued supports and prayers for the fallen members of our community never has ceased to amaze me. It's what makes me so proud to call you all my friends. I will be making a stop to visit steph tomorrow in the morning on the way to berry. I'll read her all the comments. Gonna shoot for around 10:00 am. If anyone wants to meet up. Several have expressed interest...the more the merrier.
What I can tell you regarding her condition is that there is NO CHANGE.. More spinal taps more test. The EEG is showing she continues to have seizures not visible to the naked eye. Apparently Lots of Drs are looking into it. Instead of one idiot dr. Thanks again for everything from everyone!!!!
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Thanks for the update Jeff. Wish her well from her Loose Screw friends.
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Glad to hear PIF is on this - I'm sure I'm not the only one who was hoping those wheels were turning if needed.
Thoughts and prayers for Steph - such a positive and vibrant member of the community. Get well, girl! :smt001
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Thanks big jim sctrace (aka deltatrace aka skiptrace) A hulls and all the Ncka family. Your continued supports and prayers for the fallen members of our community never has ceased to amaze me. It's what makes me so proud to call you all my friends. I will be making a stop to visit steph tomorrow in the morning on the way to berry. I'll read her all the comments. Gonna shoot for around 10:00 am. If anyone wants to meet up. Several have expressed interest...the more the merrier.
What I can tell you regarding her condition is that there is NO CHANGE.. More spinal taps more test. The EEG is showing she continues to have seizures not visible to the naked eye. Apparently Lots of Drs are looking into it. Instead of one idiot dr. Thanks again for everything from everyone!!!!
Hold her Hand for all of Us Jeff. The power of touch can be an amazing thing.
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This isn't too close to home....it is home :smt009 :smt010
Come on Steph get well girl!
BTW You're going to have more people than you'll ever need helping you fix up your yard :smt007
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Thanks big jim sctrace (aka deltatrace aka skiptrace) A hulls and all the Ncka family. Your continued supports and prayers for the fallen members of our community never has ceased to amaze me. It's what makes me so proud to call you all my friends. I will be making a stop to visit steph tomorrow in the morning on the way to berry. I'll read her all the comments. Gonna shoot for around 10:00 am. If anyone wants to meet up. Several have expressed interest...the more the merrier.
What I can tell you regarding her condition is that there is NO CHANGE.. More spinal taps more test. The EEG is showing she continues to have seizures not visible to the naked eye. Apparently Lots of Drs are looking into it. Instead of one idiot dr. Thanks again for everything from everyone!!!!
I'll see you there tomorrow Jeff!
-Allen
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I talked to Jeff and Tracey today. This is all so fucking sad. Albion will be for Stephanie this year. I pray she makes a full recovery.
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GD I love the A-Hulls/PIF. And the rest of you Muggles too.
Keep fighting Steph. You got this!
-Allen
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Yes and thank you Ravensblack Craig. So very generous of you and everyone. What a great crew I am so proud. And so scared at the same time. Call ya bout 9 Allen, dennis and skip . 👍😶
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Yes and thank you Ravensblack Craig. So very generous of you and everyone. What a great crew I am so proud. And so scared at the same time. Call ya bout 9 Allen, dennis and skip . 👍😶
Yup. Thanks RB and Albion too. Didn't read that far in your last post. Behind that grumpy exterior is a softy. :cat:
See you soon Stephie.
-Allen
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Feeling something positive happening today for Steph with all the LOVE headed her way today !!!! :smt001
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Dont know you Steph, but Raquel and I are thinking of you. ❤
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Sending positive vibes your way, Steph
You will beat this! Get well soon so we can fish!
Tommy and Jingle
Is there a Paypal account set up? to send $
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The doctors here at UCSF have a clue. Steph will be getting a biopsy done today to examine a growth on her ovary discovered with an ultrasound. The theory is that she has Anti-NMDA Receptor Encephalitis, often caused by a benign ovarian tumor.
http://www.antinmdafoundation.org/the-illness/what-is-anti-nmda-receptor-encephalitis/
Fingers crossed that they are heading towards a diagnosis, because once they know what it is, they can treat it.
Fight it, Steph, fight it!
-Allen
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Good to hear they are making progress so hopefully they can give her the proper treatment soon. Hang in there Steph.
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Hopefully they are on the right track and this is over with pronto.
Hang tough Steph. You have a ton of support behind you.
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Is there a Paypal account set up? to send $
PIF is donating $ right now to her family to help with costs associated with her stay in the hospital, and we will do what we can to help as her status progresses and changes...
Couple ways to donate to the PIF fund (for anyone who may be unfamiliar with PIF):
1. AOTY/DOTY registration fees. We already have the $1500 we need for trophies so any $ received in registration fees goes to PIF.
http://aoty.norcalkayakanglers.com/
http://doty.norcalkayakanglers.com/
2. Donations at events like the upcoming GS 11 raffle, Albion Open, PIF Paddle (date TBD) etc
3. PayPal directly to aotydoty@yahoo.com (use friends and family option so no fee gets charged).
I manage the aotydoty@yahoo.com account and can show screenshots at any time of what $ comes in and where it goes etc. We currently have $3k available for PIF in the PayPal and checking...sctrace gave steph's family $2k in cash today. See attached screenshots showing paypal and checking balances (note that $1500 of what is shown is for AOTY/DOTY, the rest is for PIF)
4. You can click on this link and send whatever you want to donate, with a paypal account or credit card, and you can add a note that it is for steph as well and I will make sure it gets to her/her family...see screenshot example:
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=RD3V2NMKSSEJC
Please let me know if anyone has any questions about the above...
Sincerely,
Jim
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Kick its ass Steph!!!
:smt008
The doctors here at UCSF have a clue. Steph will be getting a biopsy done today to examine a growth on her ovary discovered with an ultrasound. The theory is that she has Anti-NMDA Receptor Encephalitis, often caused by a benign ovarian tumor.
http://www.antinmdafoundation.org/the-illness/what-is-anti-nmda-receptor-encephalitis/
Fingers crossed that they are heading towards a diagnosis, because once they know what it is, they can treat it.
Fight it, Steph, fight it!
-Allen
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Kick Ass Steph !!!
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The doctors here at UCSF have a clue. Steph will be getting a biopsy done today to examine a growth on her ovary discovered with an ultrasound. The theory is that she has Anti-NMDA Receptor Encephalitis, often caused by a benign ovarian tumor.
http://www.antinmdafoundation.org/the-illness/what-is-anti-nmda-receptor-encephalitis/
Fingers crossed that they are heading towards a diagnosis, because once they know what it is, they can treat it.
Fight it, Steph, fight it!
-Allen
Thanks for the update Pole and the link. This part sounds promising :smt001
Fingers crossed.
Quote from the link:
"Tumour removal is a very important part of treatment.. Patients who have a tumour that is removed, recover faster and are less likely to experience a recurrence (or relapse) of their disease than those in whom no tumour is found."
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Thank goodness for doctors with clues..now we have a diagnosis..I was getting ready to blame the Russians. Hang in there Steph.
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Thanks you for the update. I hade a feeling there was gonna be good news today. Its with the help of all the positive vibes and prayers . Your gonna LOVE this post when ya feel better Steph !! :smt001
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That sounds like something positive in that she can fight and beat. You got this Steph, kick it's ass and move on with life. Positive thoughts abound.
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Great news and god link, Allen!
I like this part the best:
What is the prognosis?
Although anti-NMDA receptor encephalitis is a serious life-threatening disease, the majority of patients who receive prompt diagnosis and treatment go on to make a good recovery.
Bushy
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Sounds promising. Hang in there, Steph!
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NCKA Ohana,
We were at the hospital with Allen (polepole), Marcos (angelfish)/Tracey (sctrace)/Aaron (pondpoacher) visiting Stephanie (stephkillsit) and family. Super happy that Steph is at UCSF- great doc/ facility/ city. Jeff (iroelikethat) visited earlier in the AM.
When we left Steph at 4 pm today- she was going in for surgery to biopsy a 'tumor' in her right ovary that they suspect is causing her issues. The name of the possible cause is NMDA Encephalitis.
Below is a message from Niel (Steph's Dad). He is super humble/ unpretentious/ down to earth...beyond appreciative...
My wife and I would like to sincerely thank the NCKA for the very generous donation that Tracey handed to me today. We are amazed that so many of Stephanie's friends have so much love and concern for her.
I am sure that our dear daughter would very much appreciate all your thoughts, prayers, visits, and this donation. We will use it to supplement the expenses of staying with her while she's here in the hospital.
Len and I would love to meet you all one day...hopefully with a healthy Stephanie to introduce us to you.
Again, thank you all so much for all the support for our NCKA Ohana...will keep you posted!
Team Steph!
dshu- aka Old#7
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Thank you all for being there.
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NCKA Ohana,
We were at the hospital with Allen (polepole), Marcos (angelfish)/Tracey (sctrace)/Aaron (pondpoacher) visiting Stephanie (stephkillsit) and family. Super happy that Steph is at UCSF- great doc/ facility/ city. Jeff (iroelikethat) visited earlier in the AM.
When we left Steph at 4 pm today- she was going in for surgery to biopsy a 'tumor' in her right ovary that they suspect is causing her issues. The name of the possible cause is NMDA Encephalitis.
Below is a message from Niel (Steph's Dad). He is super humble/ unpretentious/ down to earth...beyond appreciative...
My wife and I would like to sincerely thank the NCKA for the very generous donation that Tracey handed to me today. We are amazed that so many of Stephanie's friends have so much love and concern for her.
I am sure that our dear daughter would very much appreciate all your thoughts, prayers, visits, and this donation. We will use it to supplement the expenses of staying with her while she's here in the hospital.
Len and I would love to meet you all one day...hopefully with a healthy Stephanie to introduce us to you.
Again, thank you all so much for all the support for our NCKA Ohana...will keep you posted!
Team Steph!
dshu- aka Old#7
Thanks Dennis. You guys are amazing. Big Jim. I love you man
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Yeah, amazing outreach and care. What Craig said.
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Good stuff right there!!!
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Thanks for the update! Great work everyone lending a hand, makes me proud to be a part of this community! Hang in there Steph, you got this!
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From Steph's father via sctrace.
We are beside Steph now. The surgery went well according to the nurse. There are still slight seizures being seen by the EEG, but if the tumor was the cause, they should go away with the help of med called immunoglobulin
Continued prayers and positive energy!
-Allen
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From Steph's father via sctrace.
We are beside Steph now. The surgery went well according to the nurse. There are still slight seizures being seen by the EEG, but if the tumor was the cause, they should go away with the help of med called immunoglobulin
Continues prayers and positive energy!
-Allen
Continued prayers and positive vibe!
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Team Steph...I like it!
It's not a bad idea to save this link on your desk top, in your favorites, whatever:
http://www.norcalkayakanglers.com/index.php?topic=77780.135
....in case you ever want to make a contribution to PIF or have any questions about how $$ is given out.
I cannot emphasize enough how proud I am to be associated with all of you. Thank you ALL for your continued support and contributions to the PIF fund.
You all restore my faith in people.
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Just wanna say THANK YOU to folks who have been sending donations for Steph...
:smt007 :smt008 :smt007
I am in touch with sctrace who is in touch with the family and we will make sure the $ donated gets to them as needed...
If anybody wants confirmation that their donation was received feel free to PM me...I won't post a running list publicly because some people prefer to remain anonymous with this kind of stuff...
THANK YOU!!
:smt006
Sincerely,
Jim
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Just wanna say THANK YOU to folks who have been sending donations for Steph...
:smt007 :smt008 :smt007
I am in touch with sctrace who is in touch with the family and we will make sure the $ donated gets to them as needed...
If anybody wants confirmation that their donation was received feel free to PM me...I won't post a running list publicly because some people prefer to remain anonymous with this kind of stuff...
THANK YOU!!
:smt006
Sincerely,
Jim
Thanks for doing the work Jim :smt007 oh and make sure you add my name to AOTY plan on moving up to at least 35th maybe shoot for 30th this year :smt044 :smt044
GO STEPH !!!
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Thanks for doing the work Jim :smt007 oh and make sure you add my name to AOTY plan on moving up to at least 35th maybe shoot for 30th this year :smt044 :smt044
GO STEPH !!!
Done!
You're in 68th place...nowhere to go but up?!??
:smt002
http://aoty.norcalkayakanglers.com/leaderboard/list
:smt006
Sincerely,
Jim
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Thanks for doing the work Jim :smt007 oh and make sure you add my name to AOTY plan on moving up to at least 35th maybe shoot for 30th this year :smt044 :smt044
GO STEPH !!!
Done!
You're in 68th place...nowhere to go but up?!??
:smt002
http://aoty.norcalkayakanglers.com/leaderboard/list
:smt006
Sincerely,
Jim
:smt007
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get well soon
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Thinking and praying for you Steph. Hope to see you fishing with all of us soon. Thanks for the update from everyone who had a chance to visit her. Thanks you Jim for all your PIF efforts.
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Just got finish reading this thread. I'm shocked and sadden. Sending positive energy, thoughts and prayers for her and th family. Thanks PIF and a hulls for doing this work.
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Thoughts and prayers Steph. NCKA has once again restored my faith in humans.
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Praying for positive news Monday morning. C'mon Steph, start our week off right. :smt001
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Hi NCKA Fam!
We will be sure to update you all as soon as we know more. No major change since Friday but the tumor is removed and the docs don't expect the immunoglobulin to kick in until Tues/Wed.
Thank you all for the continued support and generosity. I can only say the family is overwhelmed by how many friends Stephanie has and the incredible outreach.
Regards,
Trace (sctrace)
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Raquel and I would like to donate to Steph. Where can I find the link? Currently at work and can not read back through the posts.
Thank you.
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Hi NCKA Fam!
We will be sure to update you all as soon as we know more. No major change since Friday but the tumor is removed and the docs don't expect the immunoglobulin to kick in until Tues/Wed.
Thank you all for the continued support and generosity. I can only say the family is overwhelmed by how many friends Stephanie has and the incredible outreach.
Regards,
Trace (sctrace)
Team Steph,
Here are a few pix from Friday visit w Steph and family. I was struggling weather to post Steph pix- Her Dad Neal said was okay to post pix as this is her current situation if visiting in person or viewing on Ncka post.... She is in much better hands at UCSF- Staff/ Doc and facility to better help Steph recovery. I hope to visit later today. company welcome!
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Thanks for the post. You guys are awesome in supporting steph and her family. Our beautiful steph.
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Here you go Porky...
Is there a Paypal account set up? to send $
PIF is donating $ right now to her family to help with costs associated with her stay in the hospital, and we will do what we can to help as her status progresses and changes...
Couple ways to donate to the PIF fund (for anyone who may be unfamiliar with PIF):
1. AOTY/DOTY registration fees. We already have the $1500 we need for trophies so any $ received in registration fees goes to PIF.
http://aoty.norcalkayakanglers.com/
http://doty.norcalkayakanglers.com/
2. Donations at events like the upcoming GS 11 raffle, Albion Open, PIF Paddle (date TBD) etc
3. PayPal directly to aotydoty@yahoo.com (use friends and family option so no fee gets charged).
I manage the aotydoty@yahoo.com account and can show screenshots at any time of what $ comes in and where it goes etc. We currently have $3k available for PIF in the PayPal and checking...sctrace gave steph's family $2k in cash today. See attached screenshots showing paypal and checking balances (note that $1500 of what is shown is for AOTY/DOTY, the rest is for PIF)
4. You can click on this link and send whatever you want to donate, with a paypal account or credit card, and you can add a note that it is for steph as well and I will make sure it gets to her/her family...see screenshot example:
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=RD3V2NMKSSEJC
Please let me know if anyone has any questions about the above...
Sincerely,
Jim
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Hi NCKA Fam!
We will be sure to update you all as soon as we know more. No major change since Friday but the tumor is removed and the docs don't expect the immunoglobulin to kick in until Tues/Wed.
Thank you all for the continued support and generosity. I can only say the family is overwhelmed by how many friends Stephanie has and the incredible outreach.
Regards,
Trace (sctrace)
Team Steph,
Here are a few pix from Friday visit w Steph and family. I was struggling weather to post Steph pix- Her Dad Neal said was okay to post pix as this is her current situation if visiting in person or viewing on Ncka post.... She is in much better hands at UCSF- Staff/ Doc and facility to better help Steph recovery. I hope to visit later today. company welcome!
During last Friday visit I shared with Steph's Dad Neal NCKA post about her daughter. I bought my laptop to do some work while i was hanging out with Steph parents. As you can imagine he had many happy tears...we went through pix from Ablion and GS 2016 to give him a glimps of NCKA family- on the water fishing/ cleaning station/ food prep/ raffles/ hanging out...Neal is such a sweet Dad- from his smart phone he showed me many pix of Steph fishing with her dad- priceless! One day soon we will have Neal join NCKA event to fish with Team Steph!
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Thanks for the updates everybody! I saw the news about Steph while getting ready to board a plane for Hawaii last week. She has been in our family thoughts and prayers ever since. I was hoping to log on today with the news that Steph had made a full recovery. After reading these posts, I'm glad the doctors have pinpointed her issues and we will continue to send prayers and support her way.
Can't wait to see her back in action!
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I just heard from Trace. A bit of a step back today. :smt010
We were told last night that a test for NMDA came back negative, but meds for that will continue. They are scheduling a PET scan today to scan her whole body for tumors or growths. She continues to have seizures and are trying to adjust the dosages of the meds for that.
-Allen
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:smt010... Not what I was hopeing to hear today.
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Keep fighting Steph.
It is tough watching this unfold. Keeping my prayers on you Steph.
Thanks for the continual updates.
AHulls and the PIF are such a blessing to NCKA.
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:smt010... Not what I was hopeing to hear today.
+1 :smt011
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:smt010... Not what I was hopeing to hear today.
+1 :smt011
Yep this +1 :smt011 ..Cmon' Steph fight girl !!!!
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Blows my mind they haven't figured out what is wrong yet...like a nightmare or an episode of House or something...
:smt011
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We are still thinking of you Steph, if anyone can fight this it is you.
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Sending positive energy Steph!
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Monday update. Sad to report I've been told It's NOT MNDA test came back negative. Stephanie will have PET scan today to try to find other causes.
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Guess this means we will have to pray even harder.
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If that pic wasn't enough to choke ya up the news sure is. :smt010
Sending all I have your way Steph. Hoping for much better news tomorrow. :smt003
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If that pic wasn't enough to choke ya up the news sure is. :smt010
Sending all I have your way Steph. Hoping for much better news tomorrow. :smt003
It did ...Go Steph !!!
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Guess this means we will have to pray even harder.
Amen ! I pray and think positive thought every morning for OUR Steph !
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Dear Steph and Family, somehow the very upsetting news of your illness has just reached me more than a week late. I am so very, very sorry to hear this. Steph, even though we've not met, your posts are ones that I always read; they have a great attitude and are fun too.
There just aren't many women in the forum, and that makes you rare, extra special, but your family already knows that. So if you're not well, that really upsets me and I think everyone else here.
We're all decent fishermen, and we know that sometimes the bite isn't quite on...yet. But we also know that if we keep our lines in the water, you will get better!
Imagine this: Several hundred crazy kayak fishermen, all with their lines in the waters all around YOU! You are not getting away from us, no way — we will bring you up! You will fish with us again, so fight on!
Tight lines Girl, and Pinay power!!
— Bradley
Sent from my iPhone using Tapatalk
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Dear Steph and Family, somehow the very upsetting news of your illness has just reached me more than a week late. I am so very, very sorry to hear this. Steph, even though we've not met, your posts are ones that I always read; they have a great attitude and are fun too.
There just aren't many women in the forum, and that makes you rare, extra special, but your family already knows that. So if you're not well, that really upsets me and I think everyone else here.
We're all decent fishermen, and we know that sometimes the bite isn't quite on...yet. But we also know that if we keep our lines in the water, you will get better!
Imagine this: Several hundred crazy kayak fishermen, all with their lines in the waters all around YOU! You are not getting away from us, no way — we will bring you up! You will fish with us again, so fight on!
Tight lines Girl, and Pinay power!!
— Bradley
Sent from my iPhone using Tapatalk
:smt010
We are sharing all of these messages with Steph (Jeff iroelikethat read all up through Friday to her) and we will continue to share with the family. Old#7 showed Stephs Dad the NCKA site Friday and showed him a ton of pics so he would know more of what we are about at NCKA. You are all amazing.
-sctrace
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You are very precious to us Steph. Please get better. We love you.
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Steph, Amy and I are keeping you in our thoughts and are hoping for your full recovery. You are an amazing person and we love you.
Jim and Amy
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Steph,
Hurry up and get well. You don't want to miss out on Turkey season
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Extra good vibes sending your way Steph!
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Steph I wanna see you charging out to the Mile Buoy in Santa Cruz again, and SOON!!
Bushy
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Everytime I open this thread, I keep hoping to read some positive news. :smt010 Come on Steph! We are all worried about you. Just get out of that bed of yours the fish are calling. Lets go! Here some more positive vibes for you!
-
stop playing around Steph and beat it...a big pot of crawdads is calling your name!! Come get some....
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Everytime I open this thread, I keep hoping to read some positive news. :smt010 Come on Steph! We are all worried about you. Just get out of that bed of yours the fish are calling. Lets go! Here some more positive vibes for you!
Same here. :smt011
-
Hoping for a definitive PET/CT scan. Shes in good hands at UCSF.
-
REPOST FROM Facebook LCKA page (you may need to cut and paste links)
Thank you California Canoe & Kayak (Keith Miller & Tammy Borichevsky) !!!
StephKillsit, a NorCal Kayak Angler and all around badass, has had the unthinkable happen. About 2 weeks ago out of the blue Stephanie Lopez aka StepKillsit started having seizures to the point she has had to be completely sedated to stop them. She has been moved to UCSF and is under the best care possible. But still the Dr's have not been able to diagnose and treat the cause of the seizures. When they try to reduce the medication Steph's seizures immediately return.
The NorCal Kayak Anglers community is known for taking care of its own. After reading in more detail about what Steph has been going through it tore me up inside. The owners of California Canoe & Kayak (Keith Miller & Tammy Borichevsky) contacted asking them to donate a kayak to be raffled off for Steph. I got a call back quicker than I was expecting and I could hear the concern for Steph in Keith's voice. He told me that as soon as he and Tammy read my email there was no hesitation in their decision. So I will be picking up a new 2013 Hobie Quest 13 from the Rancho Cordova shop next week.
We will be raffling off this 2013 Hobie Quest13, and the tickets will cost $20 each.
All $$ raised will go to Steph and her family to help them through this terrible time in their life, and if there is any left over it will stay in the Pay It Forward (PIF) fund for future NCKA members in need. If you want to know more about the PIF, there are more details here:
http://www.norcalkayakanglers.com/index.php?topic=64354.0
The drawing will take place on Saturday April 29, 2017 via live video on Facebook. The winner of the kayak will either need to pick up, coordinate pickup via "NCKA express", or pay for shipping.
Please, please, please if you have the ability to help buy a raffle ticket, make a donation, and share this as much as you can so we can make sure that during this time all Steph and her family's focus is on her health. If nothing else please say a prayer or send healing thoughts to Steph.
Here is the link to buy raffle tickets or make a donation.
https://www.paypal.com/webapps/shoppingcart?mid=4166462157030624114907181491939547&flowlogging_id=53c1540c5be0e#/checkout/shoppingCart
If you'd like to follow Stephs progress here is the link that is updated as more info is available.
http://www.norcalkayakanglers.com/index.php?topic=77780.0
THANK YOU for your donations, thoughts and prayers!!!
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When awful things happen to good people, it questions my strength and make me realize our precious life is. I believe that community strength and love aids in healing. All your thoughts and prayers directed to Steph are warranted and needed. Send money to her family so they can weather this tragedy without financial ruin. NCKA has always stood ready to help each other.
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REPOST FROM Facebook LCKA page (you may need to cut and paste links)
Thank you California Canoe & Kayak (Keith Miller & Tammy Borichevsky) !!!
StephKillsit, a NorCal Kayak Angler and all around badass, has had the unthinkable happen. About 2 weeks ago out of the blue Stephanie Lopez aka StepKillsit started having seizures to the point she has had to be completely sedated to stop them. She has been moved to UCSF and is under the best care possible. But still the Dr's have not been able to diagnose and treat the cause of the seizures. When they try to reduce the medication Steph's seizures immediately return.
The NorCal Kayak Anglers community is known for taking care of its own. After reading in more detail about what Steph has been going through it tore me up inside. The owners of California Canoe & Kayak (Keith Miller & Tammy Borichevsky) contacted asking them to donate a kayak to be raffled off for Steph. I got a call back quicker than I was expecting and I could hear the concern for Steph in Keith's voice. He told me that as soon as he and Tammy read my email there was no hesitation in their decision. So I will be picking up a new 2013 Hobie Quest 13 from the Rancho Cordova shop next week.
We will be raffling off this 2013 Hobie Quest13, and the tickets will cost $20 each.
All $$ raised will go to Steph and her family to help them through this terrible time in their life, and if there is any left over it will stay in the Pay It Forward (PIF) fund for future NCKA members in need. If you want to know more about the PIF, there are more details here:
http://www.norcalkayakanglers.com/index.php?topic=64354.0
The drawing will take place on Saturday April 29, 2017 via live video on Facebook. The winner of the kayak will either need to pick up, coordinate pickup via "NCKA express", or pay for shipping.
Please, please, please if you have the ability to help buy a raffle ticket, make a donation, and share this as much as you can so we can make sure that during this time all Steph and her family's focus is on her health. If nothing else please say a prayer or send healing thoughts to Steph.
Here is the link to buy raffle tickets or make a donation.
https://www.paypal.com/webapps/shoppingcart?mid=4166462157030624114907181491939547&flowlogging_id=53c1540c5be0e#/checkout/shoppingCart
If you'd like to follow Stephs progress here is the link that is updated as more info is available.
http://www.norcalkayakanglers.com/index.php?topic=77780.0
THANK YOU for your donations, thoughts and prayers!!!
Thank you for stepping up in a BIG way!
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As with all the thoughts from the NCKA family members my family's thoughts are with you too. Hang in there Steph! We are thinking of you.
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I just read the FB post and the thread here. This is horrible and it saddens my heart. The out pour and response from the club is amazing.
Steph, Me and my family are sending well wishes and prayers to you and your family. As a Northern CA kayak fisherman/ woman I know you are resilient, dedicated, tough as nails and are willing to take on the strongest of head winds to reach the glory hole. Keep fighting Steph, we know you got this!
Raffle proceeds from the Revo13 from the Rollins event will go to PIF to hopefully help with whatever Steph's family needs.
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Prayers being sent to a healthy recovery!
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Raffle proceeds from the Revo13 from the Rollins event will go to PIF to hopefully help with whatever Steph's family needs.
THANK YOU Mike!!!!
:smt008
:smt006
Sincerely,
Jim
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I just read the FB post and the thread here. This is horrible and it saddens my heart. The out pour and response from the club is amazing.
Steph, Me and my family are sending well wishes and prayers to you and your family. As a Northern CA kayak fisherman/ woman I know you are resilient, dedicated, tough as nails and are willing to take on the strongest of head winds to reach the glory hole. Keep fighting Steph, we know you got this!
Raffle proceeds from the Revo13 from the Rollins event will go to PIF to hopefully help with whatever Steph's family needs.
Thank you Mike!!!!!!!!! :smt008 :smt006
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Raffle proceeds from the Revo13 from the Rollins event will go to PIF to hopefully help with whatever Steph's family needs.
Awesome.
Strong work, brother.
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Yersterday's update via Trace via Neil.
The PET scan did not show anything unusual. They did give her a new drug that seems to be decreasing her seizures.
-Allen
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Yersterday's update via Trace via Neil.
The PET scan did not show anything unusual. They did give her a new drug that seems to be decreasing her seizures.
-Allen
Thanks Allen...just blows my mind that they still haven't figured out what is going on... :smt010
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In the past 5 days more than $5,100 has been donated for Steph...
On Friday 4/7 the PayPal balance was $4,310...today it is $9,465...
What an amazing community this is...
THANK YOU all!!!!
Sincerely,
Jim
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In the past 5 days more than $5,100 has been donated for Steph...
Seriously strong work everybody! I'm proud to be associated with you all!
-Allen
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In the past 5 days more than $5,100 has been donated for Steph...
Seriously strong work everybody! I'm proud to be associated with you all!
-Allen
Me, too!!!!
:smt007 :smt007 :smt010 :smt007 :smt001 :smt001
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We are a family and Steph is part of that family.
-
In the past 5 days more than $5,100 has been donated for Steph...
Seriously strong work everybody! I'm proud to be associated with you all!
-Allen
Me, too!!!!
:smt007 :smt007 :smt010 :smt007 :smt001 :smt001
We've received over $1,400 more since I posted that update this morning...so over $6,500 since Friday...
:smt007 :smt007
C'mon Steph!!!!! We're all pulling for you!!!
:smt008
Sincerely,
Jim
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Over $7,060 raised between Friday and COB today...$11,372.94-$4,310.03=$7,062.91)...
I'm speechless....
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I just read the FB post and the thread here. This is horrible and it saddens my heart. The out pour and response from the club is amazing.
Steph, Me and my family are sending well wishes and prayers to you and your family. As a Northern CA kayak fisherman/ woman I know you are resilient, dedicated, tough as nails and are willing to take on the strongest of head winds to reach the glory hole. Keep fighting Steph, we know you got this!
Raffle proceeds from the Revo13 from the Rollins event will go to PIF to hopefully help with whatever Steph's family needs.
Nice Dude !!!!
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I have been out a few days, and got caught up. :smt010 Hang in there Steph! We are all pulling for you! :smt006
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Just got caught up as well....so sorry to hear this! Wasn't this young lady just at her first Crab Fest in Jan?? Am I thinking of the same person?
My prayers are with her - glad she is at UCSF.
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Sorry I got home late last night and was too drained to write this update. Dennis Tracey and I visited the hospital in San Fran last night and Steph's condition is unchanged. Seizures are still happening when they reduce her meds. The new drug phenol barbatol is reducing the episodes but not stopping them. they will put a tracheotomy in and remove her breathing tube today. The tube is only short term thing. To clarify a previous statement....it was the spinal tap fluid that showed that it was not NMDA, but the biopsy from her cyst is still being processed and we don't have the results yet. they would like to possibly try electroshock next to try to "reset" her nerve system. There are some legality issues that need to be resolved first.
Your continued prayers for our NCKA Sister Stephanie is so greatly appreciated. The outpouring of support...spiritually emotional and financial is rapid,immense and overwhelming. Her family so grateful. Thank you all so much.
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Sorry I got home late last night and was too drained to write this update. Dennis Tracey and I visited the hospital in San Fran last night and Steph's condition is unchanged. Seizures are still happening when they reduce her meds. The new drug phenol barbatol is reducing the episodes but not stopping them. they will put a tracheotomy in and remove her breathing tube today. The tube is only short term thing. To clarify a previous statement....it was the spinal tap fluid that showed that it was not NMDA, but the biopsy from her cyst is still being processed and we don't have the results yet. they would like to possibly try electroshock next to try to "reset" her nerve system. There are some legality issues that need to be resolved first.
Your continued prayers for our NCKA Sister Stephanie is so greatly appreciated. The outpouring of support...spiritually emotional and financial is rapid,immense and overwhelming. Her family so grateful. Thank you all so much.
Thanks for the update Jeff. Hang in there Steph.
-Kiel
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Sorry I got home late last night and was too drained to write this update. Dennis Tracey and I visited the hospital in San Fran last night and Steph's condition is unchanged. Seizures are still happening when they reduce her meds. The new drug phenol barbatol is reducing the episodes but not stopping them. they will put a tracheotomy in and remove her breathing tube today. The tube is only short term thing. To clarify a previous statement....it was the spinal tap fluid that showed that it was not NMDA, but the biopsy from her cyst is still being processed and we don't have the results yet. they would like to possibly try electroshock next to try to "reset" her nerve system. There are some legality issues that need to be resolved first.
Your continued prayers for our NCKA Sister Stephanie is so greatly appreciated. The outpouring of support...spiritually emotional and financial is rapid,immense and overwhelming. Her family so grateful. Thank you all so much.
Man every time I see an update I keep expecting to read she's on her way to recovery. :smt010
Keep fighting Steph you have so many people pulling for you. All my prayers are focused on you.
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Phenobarbital is a class of drugs known as barbiturate anti-convulsants /hypnotics if I remember right , works by controlling the abnormal electrical activity in the brain that go off during a seizure. Man ...
Yeah like everyone else I want to read she is awake and and responding to family and friends..
Positive vibes and thoughts for Steph , her family and for all those treating her at UCSF
GO STEPH , FIGHT ON GIRL !!!
p.s. did they ever check her Mercury level ?
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Just got caught up as well....so sorry to hear this! Wasn't this young lady just at her first Crab Fest in Jan?? Am I thinking of the same person?
My prayers are with her - glad she is at UCSF.
Yes that was her. She has been a part of NCKA for a while now, just her first Crabfest.
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FYI. There is a gofundme page set up by Stephanie's brother.
https://www.gofundme.com/savestephanie925
Not meaning to take away from the fund raising efforts here. Keep at it! I'm just sharing that there are others out there trying to support Stephanie.
-Allen
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FYI. There is a gofundme page set up by Stephanie's brother.
https://www.gofundme.com/savestephanie925
Not meaning to take away from the fund raising efforts here. Keep at it! I'm just sharing that there are others out there trying to support Stephanie.
-Allen
Fantastic support. Great to see the outpouring of love for our Steph.
Looking forward to a miracle recovery and very good news soon.
-
Over $8,600 raised for Steph as of COB today via the kayak raffle and donations since Friday 4/7.
$12,979-$4310=$8,669
:smt008
:smt006
Sincerely,
Jim
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Looking fwd to fishing with ya again steph...you've been on all of our collective minds in these past days..
I'm struggling to find the appropriate words...but just know that we all love you....
damn proud that our kayaking community is rallying for this gal...top notch all the organizers, truly...
Daviator
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Short update. Steph had a Tracheotomy yesterday, as she's been on a ventilator for quite some time now. This will be easier on her.
She also was supposed to get yet another MRI last night.
Sorry, no updates on a diagnosis. :smt010
Seems like there are a few people planning on visiting her today at different time. I'll be heading up after work and will be there around 6:30 if anyone wants to join.
-Allen
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thank Alan, yes, I plan to visit UCSF early afternoon then hit the cove with kayakjack and a few other for the Giants Game and fireworks after.. Ill update ya'll if I get anything new.. :smt010
hope they find something soon!! :smt013
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Thanks everyone for the updates. The donations are staggering. Very proud of the community. Great work to all, and my prayers are with Steph. Hard to see her in this shape.
-
Stunned to hear about all of this ,,,
You got this Steph,
If there ever was a Fighter, :smt027
Your it ,,,, :smt045
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Just an update on $$...
As of this AM we had raised $9,596 for Steph...
I just zapped sctrace $9,600 to give to Steph's dad on Monday to help with outstanding bills etc...
This is in addition to the $2,000 that we already gave to the family on 4/6/17.
So, through the CCK/Hobie Kayak Raffle and donations, NCKA and PIF have given $11,600.
:smt007 :smt008 :smt007
I have attached screenshots showing the first transfer and this most recent one.
If anyone has any questions or concerns please just let me know.
Thank you!!!
:smt006
Sincerely,
Jim
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I visited Steph and family last night. Nothing concrete yet. The next step being taken is to take a tissue sample from her thigh to do a mitochondrial analysis. There are several mitochondrial disorders that can result in epileptic seizures.
I shared with Neil the ongoing fundraising efforts here at NCKA, especially Rider's initiative to get CCK involved and put together a raffle, and the amount raised in just a few days. He was very much surprised, but also so humble and appreciative.
Neil shared some stories with me, including the fact that as a teenager, Steph used to sneak out the window at nights to go cause trouble. Hardly the angel we all know and love now! :smt005 Sorry Steph, but we could all use a chuckle right now, and I'm sure you're laughing with us on this one.
-Allen
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Awesome just awesome !!!!
-
Mooch's sister, Rachel was in a coma for over a month, I remember her telling us. I don't think they ever figured out what it was. The human body is full of mysteries.
I can't wait to hear, over a campfire, what you were up to sneaking out of windows worrying your dad to death, Steph!
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Thanks so much to the whole team that is showing so much love in so many ways
I was gonna report yesterday after my visit. But I couldn't spell mitochondria
Thanks for reporting Allen.
For The third time a neurologist comes to speak,I happen to be there. he says it's a Minor procedure. With less than 1/2% of problems. Will report again tomorrow
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Jeff, Thanks for the updates. Steph is a very special lady. I can remember meeting her in the parking lot at HMB, probably 3 or 4 years ago. She was looking for a safe place to car camp and was just beginning what would eventually become her love for kayak fishing. It's just hard to believe such a vibrant person could become so sick, so suddenly. I can't wait to hear an update from you indicating that she is on the mend. She remains in my thoughts and like all of my brothers and sisters in NCKA, positive energy is being sent her way.
Martin
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Thanks for the update Jeff, it sounds the next procedures has some promises keeping my fingers cross. Lets go steph you got this.
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So sorry to hear of this just now. I will pray for you Steph. I never told you this, but in the early days of your saltwater fishing, seeing you charging out in rough conditions always made me smile, as I admired your courage and determination:smt006
Hang in there girl, we are thinking of you!
Mike
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Prayers 4 steph and her family on a special day. Miss you girl.
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A few updates from today via Trace.
$9600 from PIF, raised this week alone, was delivered to Stephanie's dad today. Great job so far all, the raffle is not closed yet, so buy your tickets and support Steph!
Steph's seizures went down from a rate of 6-8 an hour (as reported by the EEG as they aren't outwardly visible) to 3 an hour. As Trace puts it, "that's something at least". Keep the hope, and keep channeling positive energy to our girl!
-Allen
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Thanks for keeping us updated, Allen. You're a good friend. Still keeping fingers crossed.
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Saw stephie today. No change other than the seizures have reduced to 3-6 /hr. So this is an improvement. We hope. Her facial twitches are more prominent and constant now. And she was running a slight fever but cooling down. She is scheduled for surgery tomorrow for the muscle biopsy. Tracey took the family a check today from the pif foundation. Her family is so very grateful for the monies raised for her behalf. And is every so thankful to the entire NCKA community. We all continue to pray for her and that her doctors will find a cure of this strange and mysterious illness that is taking her from us. #stephkillsit
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From Steph's father, Neil, via Trace.
Len, Corney, and I, would like to thank NCKA again for the very large donation that will be going to cover Stephanie's various expenses and to supplement our expenses as we keep her company here at UCSF. Your generosity, concern and love for her is so greatly appreciated. Regards to you all.
-Allen
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Steph you're on my mind this morning. We need you to kick this things ass so you can be at GS with all the other scummies.
Let's go Steph KILL it!!!
#StephKillsit
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Thinking of you buddy! Hang in there. :smt010
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C'mon Steph!!!
:smt008
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Steph, come on, you can get through this!
Fewer episodes is really encouraging!
I know you wanna hit the handline FnC! :smt001
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I will make a visit to bring food for the family and some healing mojo. Hoping to hear good news soon.
-ML
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Amy and I have been thinking of you Steph, we know you can beat this :smt007
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Think about you every day Steph. Let's get over the hump and back on the kayak.
-
Hoping for your recovery every day Steph...
-
Sending positive energy everyday Steph!
-
I do not know Steph, but about ten years ago I spent a week in an ICU after a rollover car accident in which I broke my neck and was partially paralyzed. Long story, but among other things the whole experience taught me that positive energy does help. I do not know where I would be today without the kindness of many people.
Wishing you well Steph, and all your friends, loved ones, and family. Get well soon !
-
Steph ..Thinking of you , sending positive mojo your way !!!!
-
Come on Steph!!!!
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The results of the muscle biopsy / mitochondria tests are due today. Fingers crossed for some clues ...
-Allen
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The results of the muscle biopsy / mitochondria tests are due today. Fingers crossed for some clues ...
-Allen
+1
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The results of the muscle biopsy / mitochondria tests are due today. Fingers crossed for some clues ...
-Allen
Praying for positive results
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I think about Stephanie daily sometimes many times. Sending lots of love and hope to her, her family and the medical team.
Sent from my XT1585 using Tapatalk
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Sending positive vibes for some positive news today. Let's go Step
#StephKillsit
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Thursday Update: Reporting in that Stephanie's Biopsy on her leg muscle went well and the results will take longer than we all want... they are treating her with a mitochondrial cocktail in case it comes back positive.. however the seizures have increased. I've not been told by how much. the lowest we've seen was 3 per hour... thank you all for your continued prayers, support and generosity.
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Aargh!!
Hang in there Steph!!!!
We miss you!!!!!!
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:smt010 :smt010... Damn it..... Come on buddie!
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Arghhh is right ..Cmon Steph !!!
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Not the news I was wanting to hear but for some reason I'm feeling very optimistic. Steph is a young strong woman and she's full of fight. It's only a matter of time and she's gonna kick the shit out of this thing.
We all got your back Steph let's do this.
#StephKillsit
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Steph we are rooting for you, you got this!
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Steph, I miss your smiling face and positive attitude! It's hard to imagine this happening to someone so youthful & vibrant & enthusiastic. While I'm not necessarily a religious man, I have been actively praying for you to pull through this terrible situation. Hopefully it will help to know that so many people are thinking good thoughts. In the last 12 days, there have been donations from 186 different people...ranging from $20 up to $950. I know it's just money, and that alone won't cure what ails you. But it's uplifting to see how many people care deeply about you.
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Steph come on now! Im too old my heart cant take this much stress. I promise I will show you my secret spot at contra loma. :smt007
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Keep up the fight Steph. I've got a nice little saddle between water and a bedding area with your name on it.
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My total frustration pales in comparison to what you are going through Steph.
I wish I could kick it's ass for you but you'll have to do some serious ass kicking on your own.
I'm in your corner. Let's get it on!!!!!!!!!!
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Well said Mike. I wish there was something we could do to fix this !
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I don't know Steph but am saddened to hear of the sudden illness, and at the same time warmed by the outpouring of support.
Where are donations being collected?
Ross
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From Neil via Trace.
Steph was just given a new drug called Pentobarbital, and it has stopped her seizures. The EEG shows no signs of seizures. This is not a cur,
but it's supposed to give her a break, and hopefully they don't come back. In the meantime she's still on antibiotics and various other meds.
Keep the good thoughts coming everyone.
-Allen
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Yes!!! Progress!
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Yeah, been hoping for some progress!
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I don't know Steph but am saddened to hear of the sudden illness, and at the same time warmed by the outpouring of support.
Where are donations being collected?
Ross
You can send $ via PayPal directly to aotydoty@yahoo.com (use friends and family option so no fee gets charged).
I manage the aotydoty@yahoo.com account and can show screenshots at any time of what $ comes in and where it goes etc.
Or, you can click on this link and send whatever you want to donate, with a paypal account or credit card, and you can add a note that it is for steph as well and I will make sure it gets to her/her family...see screenshot example:
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=RD3V2NMKSSEJC
Or, you can buy tickets in the raffle for a brand new Hobie Quest:
http://www.norcalkayakanglers.com/index.php?topic=77899.0
Or, you can buy tickets in this raffle for a guided kayak fishing trip:
http://www.norcalkayakanglers.com/index.php?topic=78055.0
Thank you!!
:smt006
Sincerely,
Jim
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Thursday Evening update: the Doctors at UCSF have changed her meds to Phenobarbital and the seizures have stopped!!!!!!!!!!
This is not a cure but will give her a break and they are hoping this will allow her nerverous system to "reset" the Biopsy and other text results are going to take another week or maybe. Lets stay positive and continue to pray. I will give another update as soon as I know anything.....as always THANKS TO ALL!
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Some positive news at last. Hopefully this just the first good news and there is more to come soon. Thanks for the update, Jeff.
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Thanks for the update, that is some great news in the right direction.
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Thanks for the update Jeff. Hope to see you back on the water soon Steph.
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Better news at last!!
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WTF Steph !!
You must really be sick to be missing turkey and fishing season. Time is passing but we are ABSOLUTELY NOT GIVING UP ON YOU. Hurry up and rejoin us
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Emotional. Glad to get a glimmer of good news.
Big thanks to you guys for keeping us updated.
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Yes!!!
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Awesome update!!!
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Thanks for the update Jeff. My family and I are constantly praying for your speedy recovery Steph. I can't wait for you to get better. We still have much pistol shooting to do sis.
Jedmo
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So glad to hear of the progress.
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Thursday Evening update: the Doctors at UCSF have changed her meds to Phenobarbital and the seizures have stopped!!!!!!!!!!
This is not a cure but will give her a break and they are hoping this will allow her nerverous system to "reset" the Biopsy and other text results are going to take another week or maybe. Lets stay positive and continue to pray. I will give another update as soon as I know anything.....as always THANKS TO ALL!
Thanks for the updat Jeff.
This is what I was wanting to see. Something positive moving in the right direction.
Let's go Steph time to give this thing Hell and kick the shit out of it.
Praying for your strength Steph.
#StephaKillsit
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Glad to see better news when I checked the thread today.
I don't know Steph, but I've been checking the thread daily hoping for better news.
Looking forward to fishing with you in the future, Steph!
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Hell YEAH! THis is what I hope to read everytime I open this thread!! A positive news! Thank you Jeff for the update!
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Right On!
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Takin' any good new at this point, and stopped seizures is huge!
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Thanks for the update Jeff! You just made my day!
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Steph had an appt with another dr today at 3:00 pm I dont have any info yet... hoping for the best!
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Yay!! Progress!
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She doesn't know it yet. But she's making a killing on her lam stock she bought.
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Friday night update.
Results from leg muscle biopsy is negative. Back to sq1. Still baffling the best doctors in the world. They are going to see what happens after 48 more hrs without seizures. Then Adjust the pentobarbital and see what happens. Thank you again to all Of THE NCKA family for your continued support love and prayers for our friend Stephanie.
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Damn.
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Well a negative test result is still a test result and one more step toward figuring out how to help her fight this crap. Hang in there Steph.
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Any idea how many DRs are working on this? It's easy to play arm chair QB on something like this, but at the same time it's baffling with today technology they can't figure this out.
Im' guessing things like this happen more often than not and unless it directly affects you it's not something you would likely know about.
I can only imagine the love you will feel Steph when you read this thread. We will all be grinning ear to ear when you do read it.
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.
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Steph,
Maya and I are sending good thoughts. I learned about this while out of the country and even though I'm back now, I've been knocked on my butt by a nasty sinus infection and vicious cough. I'm hoping when I'm able to visit, you will be able to tell me all about your beauty rest.
Nate
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Good Morning Sunshine, we are all patiently waiting for you ! :smt008 :smt001
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Hey Steph!
I went surfcasting on Thursday morning at Rio Del Mar. Didn't catch anything, but I think we saw a Great White breach. I saw it was too big for a dolphin and too small for a whale. About 1/4 mile out. A buddy later talked to me and asked "did you see that?" he thought it was a shark also, which was my first impression when I saw it.
The sun was rising and clouds were scattered. About a 5 knot offshore wind. The waves felt so good on my bare legs.
Once you get outta that bed, come on down and we'll hit the beach, maybe get lucky and catch a striper or three!
Bushy
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Thinking about you Steph!
I dove for stripers last night and got to pet a friendly leopard shark!!
It was so cool, you would have loved it.
Had a few beers after I got out of water at the beach watching the sunset right where we will do the PIF paddle in a few months...counting on you being there!!
:smt008
Jim
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Sending supersonic vibes to Steph...
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You got this girl!
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Good morning Steph. I have a true story that I am only sharing with you. SSShhh, don't tell anyone.
So I went "cute " perching the other morning, as FM1 would put it. :smt001 . A friend of mine wants to go as well. So we head to my local spot. Casting and walking, casting and walking. We cover close to a mile of shore and decide to take a rest and re-rig new grubs since the ones up to there did not produce anything.
So we put are new grubs on and take a rest. So me and my friend are shooting the breeze and are laying on the sand a little past where the water will not wet us at the shore. Just kinda layed out where you have your arm supporting your head and not all the way layed out . And No we are not looking into each others eyes. :smt005
Conversation has come to an end and we decide to head back and fish it again. As we go to stand up I notice there is a baby seal that was headed up to us . He see's that we are not his parents and begins to frantically head back into the sea. :smt005
So I quickly tell my buddy that the baby seal had seen him out in the distance and thought he was the mother and came in to suckle on him. :smt005 :smt005 :smt005
See ya soon Sweetie !!!
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Good morning Steph. I have a true story that I am only sharing with you. SSShhh, don't tell anyone.
So I went "cute " perching the other morning, as FM1 would put it. :smt001 . A friend of mine wants to go as well. So we head to my local spot. Casting and walking, casting and walking. We cover close to a mile of shore and decide to take a rest and re-rig new grubs since the ones up to there did not produce anything.
So we put are new grubs on and take a rest. So me and my friend are shooting the breeze and are laying on the sand a little past where the water will not wet us at the shore. Just kinda layed out where you have your arm supporting your head and not all the way layed out . And No we are not looking into each others eyes. :smt005
Conversation has come to an end and we decide to head back and fish it again. As we go to stand up I notice there is a baby seal that was headed up to us . He see's that we are not his parents and begins to frantically head back into the sea. :smt005
So I quickly tell my buddy that the baby seal had seen him out in the distance and thought he was the mother and came in to suckle on him. :smt005 :smt005 :smt005
See ya soon Sweetie !!!
Hey Alex, that's not funny when you are the one being made fun of. Man boobs and all.
It really happened to me.
https://instagram.com/p/BEZkfNaBqi6/
Get well Steph
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Good morning Steph. I have a true story that I am only sharing with you. SSShhh, don't tell anyone.
So I went "cute " perching the other morning, as FM1 would put it. :smt001 . A friend of mine wants to go as well. So we head to my local spot. Casting and walking, casting and walking. We cover close to a mile of shore and decide to take a rest and re-rig new grubs since the ones up to there did not produce anything.
So we put are new grubs on and take a rest. So me and my friend are shooting the breeze and are laying on the sand a little past where the water will not wet us at the shore. Just kinda layed out where you have your arm supporting your head and not all the way layed out . And No we are not looking into each others eyes. :smt005
Conversation has come to an end and we decide to head back and fish it again. As we go to stand up I notice there is a baby seal that was headed up to us . He see's that we are not his parents and begins to frantically head back into the sea. :smt005
So I quickly tell my buddy that the baby seal had seen him out in the distance and thought he was the mother and came in to suckle on him. :smt005 :smt005 :smt005
See ya soon Sweetie !!!
Hey Alex, that's not funny when you are the one being made fun of. Man boobs and all.
It really happened to me.
https://instagram.com/p/BEZkfNaBqi6/
Get well Steph
Thats awesome. Until they start nipping you from what ive heard.
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We are here at UCSF now. Steph is resting peacefully and hopes are high.
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She does look peaceful. :smt001 Thanks for the update and pics Raydon.
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Hi Steph,
Right after I bought my first kayak I joined this little fish in chill with a Handline. Up to that point I've only been on a few lakes with the kayak, but hey what could go wrong. I was really nervous, but you were one of the first people to start a conversation and make me feel welcome with the group.
I know this feels like a lot, and I know it's overwhelming, but you got this. Everyone here has your back, is pulling and praying for you.Before you know it you'll be sitting on the beach after a nice day on the salt laughing and having a drink.
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We are here at UCSF now. Steph is resting peacefully and hopes are high.
Thanks for the update, Raydon. It is so difficult to see this vibrant, fierce woman down like this for so long. As always, Steph we are thinking about you nonstop, sending you love and good vibes and hope to see you up and about very soon.
Love, Amy and Jim
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Thoughts and prayers for Steph! I haven't met her yet but I always enjoyed reading her reports and posts. You could tell how excited she was and how much she enjoyed fishing.
I'm far from a Dr but doing a little research brings up NORSE. There are lots of other possibilities and I hope they find a cause soon and can treat appropriately.
https://rarediseases.info.nih.gov/diseases/12244/norse
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Steph, Amy and I were thinking of you all weekend. we went fishing at Rancho Seco with Henry and this crusty old Scott guy, I have a feeling you would have smoked us because the fishing was awfully slow for Amy and I. at least Henry got to pet a couple fish I caught, when you are better, will you show him how to catch a shark or ray? He would love that.
Always, our love
Jim
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Good Morning Steph,
You've been on my mind a lot and I am ready for you to kick this thing in the ass and take back your life.
As always I'm sending my prayers to you and your family. I know you are going to come out of this like a champion.
Until you decide you are ready rest easy.
#StephKillsit
-James
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From Steph's brother Cornie, via Trace.
they suppressed the seizures for now under the Pentobarbital. In 48 hours if it fails then they have to start ECT. No luck yet with the diagnosis yet. They are doing a microbial test now because the biopsy test came up negative. One again I'd like to thank you for helping us out and getting everyone to support us through this all. Your love and compassion keeps us strong.
-Allen
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Prayers for those Doctors. Come on Steph, hang in there....
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From Steph's brother Cornie, via Trace.
they suppressed the seizures for now under the Pentobarbital. In 48 hours if it fails then they have to start ECT. No luck yet with the diagnosis yet. They are doing a microbial test now because the biopsy test came up negative. One again I'd like to thank you for helping us out and getting everyone to support us through this all. Your love and compassion keeps us strong.
-Allen
ECT? :smt009 :smt010 :smt009
That sounds super scary....
https://en.wikipedia.org/wiki/Electroconvulsive_therapy
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:smt010 :smt010 :smt010... Thinking of you kiddo. :smt009
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From Steph's brother Cornie, via Trace.
they suppressed the seizures for now under the Pentobarbital. In 48 hours if it fails then they have to start ECT. No luck yet with the diagnosis yet. They are doing a microbial test now because the biopsy test came up negative. One again I'd like to thank you for helping us out and getting everyone to support us through this all. Your love and compassion keeps us strong.
-Allen
ECT? :smt009 :smt010 :smt009
That sounds super scary....
https://en.wikipedia.org/wiki/Electroconvulsive_therapy
Yup. Scary. :smt010
-Allen
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Wish they could wait a little longer before this procedure. Steph's body has gone through a lot in a short period of time. Wish the Doctor's would give her body a little longer to try and fight what ails her. Hoping they have an idea that this will work for only a short period of use.
C'mon Steph ! :smt001
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update 4-26 Steph has been in a pentobarbital induced full comatose state now for over 48 hours with no seizures, They are suppose to begin the reduction of meds now and see if the rest her brain has been given is sufficient, thanks to all for your continued prayers for Stephie - aka Stephkillsit!
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Come on Steph!!!!!!!!
:smt008
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Fingers crossed and positive vibes sent. You got this Steph.
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Go Steph!
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Prayers and gives sent. Stay strong Steph!
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Wonder/worry/hope for you everyday Steph! Stop dreaming of the fishes already and get back to fishing with us!!!
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Still praying for her and the medical staff. She needs a full recovery but the doctors need to figure it out.
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God cares and hears our prayers, and we are praying for you today!
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Continued prayers for you Steph, Charisse and I pray for you daily.
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We are very patient, Steph. You have at least a hundred brothers here waiting for you.
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Anything you can do Steph can do better! Come on already! Kick this shit it the balls sister! Sending love and light to the medical staff, your family and if course you, Steph. You've got this!
Amy
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We're all praying for you Steph. Praying for your family, too.
Be strong!
#StephKillsit
-John
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23 days til Gimme Shelter Steph and it would be awesome to celebrate your recovery there. Let's do this :beer3 :metal :blob3: :blob1: :smt035 :smt030 :headbang: :yak :fish :fishing2
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spoke with Stephie's dad today.. they have taken her off the pentabarbatol. and are making adjustments still to the medication.. but the seizures have seem to have been under controlled now.... not sure what is next as they still don't know the cause.... thanks for your continued support and prayers for Stephanie!
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Praying , praying, praying.
Miss ya girl !
Alex
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Holy shit man. What a saga. That poor girl. I feel terrible for her. Please God, bring our Stephie home. Please.
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Thank you for the update Jeff.
Looking for a real life miracle here.
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No seizures without the Penta sounds like a positive step in the right direction. Little steps lead to dance, keep moving forward Steph.
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Thanks for posting the update Jeff. I got the same from Neil today. I was supposed to visit this evening, but alas, I ran out of time. Will try to make it up Sunday now ...
-Allen
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Fishing is picking up Steph. We are all lovingly waiting for you. :smt001
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I'm staying positive!! Steph you gotta get back to doing what you do!!
here's a pic I "borrowed" from the thread when you upgraded your handle:
Bushy
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The seizures are back. :smt010
-Allen
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The seizures are back. :smt010
-Allen
More prayers and good vibes on the way...
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:smt010 :smt010
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Steph, I'm thinking about you all the time, hoping, hoping, hoping you break through this. Keep up your fight, you'll get better!
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:smt009 :smt010 :smt010
Come on Steph !!! Pull through this shit!
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I'm staying positive!! Steph you gotta get back to doing what you do!!
here's a pic I "borrowed" from the thread when you upgraded your handle:
Bushy
That's a mean weapon your packing girl !! :smt001 Miss you. :smt010 :smt013
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The seizures are back. :smt010
-Allen
Oh man... .
:smt012
Thanks for the updates, guys.
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OMG I've been so out of the loop. I just hopped on the forum for the first time in months and saw this horrible news :smt010. I've had the pleasure of fishing and hanging with Steph a few times. This is truly upsetting :smt009. Hang tight girl!! We are all pulling for you. Sending mad love from your NCKA family
-deva
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yes this is truly sad news she has some new doctors.... so let hope they can find something the other have missed... Quinn and Sara and I went to see her on
Saturday before the Giants Game... we wanted to get some Elmer Fudd "were hunting wabbits'' hats like the one stephie has...
she had begun to show signs of slight facial twitching, then she semi yawned.. we thought that was a good sign... :smt010
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Continued prayers and positive thoughts to you Steph!
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she had begun to show signs of slight facial twitching, then she semi yawned.. we thought that was a good sign... :smt010
Wouldn't that be awesome that she was trying to speak and say she hears You and knows we are all missing her. She's gotta be getting better !
Alex
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Love the "you gotta ask yourself one question, do you feel lucky" photo! C'mon chica!!!
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Come on Steph, lets go!! You got this girl, I promised you that I will take you to SMC, I need to make that promise happen. Halis are calling your name in there.
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shit shit shit
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OMG! I have not stayed on top on forum and just caught up with this sad, shocking news!! I had a opportunity to hang out with Steph last year with the Shulanders at Albion Open. I remember she is such gentle, helpful, always smiling kind of girl with great passion for fishing! Hang in there girl! My prayers are with you and families! Wish you a speedy recovery and be my camp neighbor again at Albion like last year!
Mason
(ducdiva)
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From Cornie (Steph's brother) via Trace.
Hey so the nurse says she's opening her eyes and they respond to movement so not sure if Steph can notice us or what not but supposedly she's supposed to be in a deep state of unconsciousness. We're hoping it's a sign. Other than that she is showing brain activity. She is still twitching at the mouth shr is still seizing but it is on intervals. The strength of her seizures seem to have lessened from our point of view but we don't know what's happening in her brain. The doctors say the seizures are focal and localised on the temporal lobe. We have a certified from the judge to go ahead and grant the doctors permission to conduct the electro shock therapy to reboot her brain in hopes it can generate a seizure to stop her seizure. Sounds weird I know but in clinical trials it has been proven to work. So for now we are just waiting
-Allen
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our collective positivism will get her through this
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I have no doubt of that.
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Steph - Waiting patiently for you to wake up. Like so many of us here I check in the morning to see if there is any news. I check at lunch time and if I'm online in the evening, I check then too.. Waiting patiently.
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Praying
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Friends, I'm not sure if I have correctly stated Stephanie's condition. It's being called "Refractory status epilepticus" the treatment that is being proposed next is ECT Electroconvulsive therapy, if you would like to know more about it and some case studies I have found this which has mixed results. thank you all for your continued prayers and support for Stephie.
http://www.sciencedirect.com/science/article/pii/S1059131112001872 (http://www.sciencedirect.com/science/article/pii/S1059131112001872)
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I've never met her, but it is amazing how everyone has come together to support her in this trying time of her life. Let's see all that positive energy go straight to her for a speedy recovery. Wishing her and her family the best.
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I am praying for you Steph!! Fight!!! Button down the Drag!!!
Bushy
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Thanks curplunkie. !!
They have moved Stephie to room 5 on the 11th floor due to a leak
They are meeting with the ect dr tomorrow. I'll let everyone know more when I know it. Thanks again to all
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Thanks curplunkie. !!
They have moved Stephie to room 5 on the 11th floor due to a leak
They are meeting with the ect dr tomorrow. I'll let everyone know more when I know it. Thanks again to all
Thanks for keeping us all updated Jeff.
I am sure I can speak for everyone when I say I had NO idea this would be so incredibly drawn out.
C'mon Steph! Feel the vibes?
We are ALL cheering you on.
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c'mon steph...hang in there and beat this!!
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I am in grief over Steph and why this would be happening to her.
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Steph has gone more than a day without seizures and they are slowly backing off of the medications.
Sometimes it just looks like she is dreaming. Her eyes rolling under her eyes like she is in REM sleep. I hope you are having good dreams Steph.
Part way through the visit she began to open her eyes. Eventually her eyes were wide open. I couldn't resist passing my hand before her. It seemed like there was a slight track with the first motion and that was it. This seemed to happen several times. I tried mentioning her favorite things and sometimes, right after I would change the subject, it seemed like there was a bit of a reaction and then she would return to static. I hope it was not just my imagination. I believe she is in there fighting to get out
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I miss your smile Stephanie. :smt010.. Your going to pull thru.
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The day I met her, that was the first thing I noticed about Stephanie, her amazing smile...Can't wait to go slay some crab with you on the next opener Steph!! Come back to us
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The day I met her, that was the first thing I noticed about Stephanie, her amazing smile...Can't wait to go slay some crab with you on the next opener Steph!! Come back to us
I've never met Steph, but I sure noticed her positive spirit online.
Steph - We're all pulling for you and know you can beat this. The community needs you! We love you, Steph!!
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I've never met Steph, but I sure noticed her positive spirit online.
Steph - We're all pulling for you and know you can beat this. The community needs you! We love you, Steph!!
Same here...
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I visited Steph yesterday and things are about the same. Her eyes were open and her lips, brow and chin all had movements. She continues to have seizures as they have decreased her medication in preparation for the ECT procedure which will happen either today, tomorrow, or Wednesday. If you believe in collective prayer, or collective energy as a healing source, now is the time to give Steph and her family your thoughts. Her father showed me this picture while I was there and like most of us, Steph had an affinity for fishing at a very young age.
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Thanks for the update Raydon. I will definitely keep praying for her and her family.
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The day I met her, that was the first thing I noticed about Stephanie, her amazing smile...Can't wait to go slay some crab with you on the next opener Steph!! Come back to us
Yep, that's how I always picture Steph, every time we would cross paths she always said hello with a big smile. C'mon Steph!
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Amy and I are pulling for you Steph!!!
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Prayers from our family for you and yours. Get to healing already! Let's go fish!
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Steph's on my mind a lot. Sending all of my positive energy and prayer your way, girl - you've got this.
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Steph we believe in you. Positive thoughts and prayers all the time. Keep fighting, you got this.
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I sure am missing your fishing reports.
Post some up real soon...please.
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prayers sent for a speedy recovery!!
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More prayers and good vibes sending to you Steph.
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Thanks for the update raydon.
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Its just a matter of time before your able to joins us Steph . :smt001 :smt001 :smt001
Alex
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Steph, you and I share May as a birthday month .Yours is the 16th and mine is today May 8th.My birthday wish that you get well soon, very soon ,to celebrate your birthday on the 16th.. we all miss you ,your energy ,your Big Steph Smile so I`m sending you all my good birthday karma ,energy, wishes your way get well Steph, you got this !!!
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Steph.
I stopped at the Main Beach in Santa Cruz on my way home from a meeting tonight. figured I'd give a try at stripers in the surf.
It was a bright 3/4 moon and peaking high tide. Right next to the Harbor Lighthouse. You know I love that feeling of the whitewater rushing over my legs and feet, so smoothly.
And the visuals! So cool the way when the waves recede and leave a shiny hump of moonlit sand.
I noticed a rough sand patch in the moonlight and when I went to cast from that spot I realized I was standing on hundreds of wiggling sandcrabs!! Where are they when you need them? Wishng I had a bucket to scoop some up and try for perch in the morning. Well, I guess they'll be there tomorrow, I can always go back and for the secret sandcrab stash.
I saw a meteor streaking down to the SouthEast. Wish upon a falling star, right? My wish is that you'll soon be casting for stripers with me and our friends , in the moonlight, with hundreds of sandcrabs tickling your toes.
Come back Steph we need you.
Bushy
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Miss you Steph!! Praying the ECT works for you as it did for a family friend of mine who is doing great these days!! Praying for you and sending love to you and your family! You got this girl!!
Sent from my iPhone using Tapatalk
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Steph.
I stopped at the Main Beach in Santa Cruz on my way home from a meeting tonight. figured I'd give a try at stripers in the surf.
It was a bright 3/4 moon and peaking high tide. Right next to the Harbor Lighthouse. You know I love that feeling of the whitewater rushing over my legs and feet, so smoothly.
And the visuals! So cool the way when the waves recede and leave a shiny hump of moonlit sand.
I noticed a rough sand patch in the moonlight and when I went to cast from that spot I realized I was standing on hundreds of wiggling sandcrabs!! Where are they when you need them? Wishng I had a bucket to scoop some up and try for perch in the morning. Well, I guess they'll be there tomorrow, I can always go back and for the secret sandcrab stash.
I saw a meteor streaking down to the SouthEast. Wish upon a falling star, right? My wish is that you'll soon be casting for stripers with me and our friends , in the moonlight, with hundreds of sandcrabs tickling your toes.
Come back Steph we need you.
Bushy
Beautiful
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I've never met you Steph,
But seen many smiling photos.
Alex "Bulldog" tried getting me to come to the 8th annual A-Hull Forebay Fish snd Chill last February.
Sorry I couldn't find the time. Looked like everyone had a blast by the photos. When I seen photos of you with your smile I thought that I'd like to meet you at one of the events.
You have a wonderful Spirit Steph.
Wanted to let you no I like pop corn also, and look forward to popping some with you over the lying fire.
Come on girl pull out of this so we can fish and enjoy some Jiffy Pop 2gether.
We are all praying for your recovery.
-4est
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Very sorry, will keep her in my prayers!
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Praying for good news with the jump start reboot. You have a ton of friends and family pulling for you Steph. Harness that mojo and beat this thing.
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Praying for you Steph
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I Went to see Stephie after work. Took 2 hr but it was so worth it Steph responded to me tonight !!!!!!!!!
I couldn't believe it. !!! I walked in and she heard me and got all excited. Alarms started beepin for Her respiratory and heart rate threshold and temp went up a tick. Her eyes were open. Kari the nurse said she has been doing this the last couple days. Diskinesa is normal when coming off the pheno and pento. Versed Etc but The she and I leaned over her and said "Steph! close you eyes really really hard if you can hear us." AND SHE DID!! For several seconds. I said steph. Squeeze my hand if you can hear me.....AND SHE DID.. I was floored. I told her everyone is praying for her and not give up. Later I tried again and I got no response. I But I'm telling you. SHE IS IN THERE FIGHTING. They will likely proceed with ect Saturday. It may take a few treatment so keep praying. Thank you ALL 🙏🏼
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Thanks for the update, makes me happy that she is making progress.
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Fantastic news!
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Awsome!
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Thanks for that Jeff!!! That was very uplifting.
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Yes !!!! that is great news ..Fight on Steph !!!
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Damn bro that almost brought tears to my eyes :smt010
That must have been an overwhelming feeling of hope :smt007
Thank you for the positive news!
We love you Steph you're going in the right direction :groupwave
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Great news Jeff, thanks. Go Steph!
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Yes!
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Awesome news!!! Thanks for the update Jeff!!! Come on Steph ! you can do this girl!
-Kiel
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Thanks for the update, Jeff!
Come on, Steph!!!
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I Went to see Stephie after work. Took 2 hr but it was so worth it Steph responded to me tonight !!!!!!!!!
I couldn't believe it. !!! I walked in and she heard me and got all excited. Alarms started beepin for Her respiratory and heart rate threshold and temp went up a tick. Her eyes were open. Kari the nurse said she has been doing this the last couple days. Diskinesa is normal when coming off the pheno and pento. Versed Etc but The she and I leaned over her and said "Steph! close you eyes really really hard if you can hear us." AND SHE DID!! For several seconds. I said steph. Squeeze my hand if you can hear me.....AND SHE DID.. I was floored. I told her everyone is praying for her and not give up. Later I tried again and I got no response. I But I'm telling you. SHE IS IN THERE FIGHTING. They will likely proceed with ect Saturday. It may take a few treatment so keep praying. Thank you ALL 🙏🏼
Oh my God! What wonderful news! So thankful that she's still in there! We think about her on the daily! She's a bad ass! I can't wait to hug her! [emoji24] thank you for always keeping us posted, Jeff.
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Yay!! That's so awesome I'm tearing up. Come on Steph, we are pulling for you!!!
Sent from my XT1254 using Tapatalk
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Jeff, awesome update!
Such a great read first thing in the morning!
Come on Steph! You will be OTW soon! :smt001
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Thanks for the update Jeff. More prayers and good vibes sent.
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That is incredibly awesome news! My eyes were watering up just reading this, I would have been a sobbing mess if I was there. Thank you for the updates.
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Thanks for that incredible update Jeff!! That must have been amazing to witness. Get better soon Steph!! We all miss you
Deva
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That is incredibly awesome news! My eyes were watering up just reading this, I would have been a sobbing mess if I was there. Thank you for the updates.
+1
I was worried, because last I heard the ECT was supposed to happen Wednesday at the latest. Was about to text Jeff this morning for news.
Happy Happy !!!!
Thanks Jeff !!!
For those of you who don't know, Jeff drives from San Jose near Cisco City up through that traffic nightmare we call S.F. Steph is very lucky to have a friend like Jeff
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Happy to hear it Jeff!!! Keep on at it Steph!!!
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Best news of the day! Thanks Jeff for the update. Let's go sis, you're doing great. We are all praying and rooting for you.
Jedmo
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Great news!!!
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On my last visit, I walked over to her and quietly started reminiscing about our event at crab fest where she took a wave sideways and dumped her gear. Jeff and I grabbed her gear and got her squared away. She raised her self up slightly and looked as if she was trying to speak. I know that she heard me and I know that she remembered. I hope the upcoming Peocedure will give us the results that we all pray for.
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:smt007 :smt007
Come on Steph get better quick!
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HELL YEAH!!!!!
:smt007 :smt007 :smt007 :smt007
:smt008
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This has made my morning!
Steph: we're all rooting for you, hope to see you OTW soon!
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Best news of the year!! thanks for the update Jeff.
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That is great news! We are all thinking of you Steph, you got this.
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awesome news...hang in there!! :smt006
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I Went to see Stephie after work. Took 2 hr but it was so worth it Steph responded to me tonight !!!!!!!!!
I couldn't believe it. !!! I walked in and she heard me and got all excited. Alarms started beepin for Her respiratory and heart rate threshold and temp went up a tick. Her eyes were open. Kari the nurse said she has been doing this the last couple days. Diskinesa is normal when coming off the pheno and pento. Versed Etc but The she and I leaned over her and said "Steph! close you eyes really really hard if you can hear us." AND SHE DID!! For several seconds. I said steph. Squeeze my hand if you can hear me.....AND SHE DID.. I was floored. I told her everyone is praying for her and not give up. Later I tried again and I got no response. I But I'm telling you. SHE IS IN THERE FIGHTING. They will likely proceed with ect Saturday. It may take a few treatment so keep praying. Thank you ALL 🙏🏼
That is great news Jeff. You getting to see her respond to knowing you, would have definitely brought tears to my eyes.
Now you will be able to let her know how many people are wishing her well. :smt001
Alex
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I Went to see Stephie after work. Took 2 hr but it was so worth it Steph responded to me tonight !!!!!!!!!
I couldn't believe it. !!! I walked in and she heard me and got all excited. Alarms started beepin for Her respiratory and heart rate threshold and temp went up a tick. Her eyes were open. Kari the nurse said she has been doing this the last couple days. Diskinesa is normal when coming off the pheno and pento. Versed Etc but The she and I leaned over her and said "Steph! close you eyes really really hard if you can hear us." AND SHE DID!! For several seconds. I said steph. Squeeze my hand if you can hear me.....AND SHE DID.. I was floored. I told her everyone is praying for her and not give up. Later I tried again and I got no response. I But I'm telling you. SHE IS IN THERE FIGHTING. They will likely proceed with ect Saturday. It may take a few treatment so keep praying. Thank you ALL 🙏🏼
Atta girl! Keep fighting, we're with you! Awesome news!
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Crying, too. but YAY!
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What a way to start the weekend! Keep it up Steph!
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I Went to see Stephie after work. Took 2 hr but it was so worth it Steph responded to me tonight !!!!!!!!!
I couldn't believe it. !!! I walked in and she heard me and got all excited. Alarms started beepin for Her respiratory and heart rate threshold and temp went up a tick. Her eyes were open. Kari the nurse said she has been doing this the last couple days. Diskinesa is normal when coming off the pheno and pento. Versed Etc but The she and I leaned over her and said "Steph! close you eyes really really hard if you can hear us." AND SHE DID!! For several seconds. I said steph. Squeeze my hand if you can hear me.....AND SHE DID.. I was floored. I told her everyone is praying for her and not give up. Later I tried again and I got no response. I But I'm telling you. SHE IS IN THERE FIGHTING. They will likely proceed with ect Saturday. It may take a few treatment so keep praying. Thank you ALL 🙏🏼
Fuck yeah!!! This brought a tear to my eyes. Keep fighting Steph!!!
We are all waiting for you to join us.
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So glad to hear this news.... Keep fighting Steph.
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Thank you Jeff! My eyes got watery. Steph we will continue to pray for you!
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Hey Rider,
Thanks for sharing this Great News🌅🌈🌈🌈NCKA is an amazing commuity🌅Wow GS11 for Steph to continue and get better🙏🏽🙏🏽🙏🏽❤️
Aloha,
Da Bruddah❤️😎🙏🏽
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Hell yea!!!!!! So freakin happy to hear this!!!!!!
Come on steph it's time to get up.
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Hell Yeah!!! :smt007 :smt007 Keep fighting, Steph! You're heading in the right direction. We're all rooting for you.
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She is scheduled for the ect tomorrow at 9:00AM
Do that thing. Then
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Stephanie's procedure went as planned there are no expected results as of today they plan to do it again tomorrow and again on Monday if required. Her 34th birthday of course is on Tuesday let's hope and pray that we have some results by then. Thanks again everyone for all your support and prayers🙏🏼
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Thanks for the update Jeff. Not a day passes that I'm not thinking of Steph. I'm ready to see that smiling face again soon.
Martin
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I'm hoping for a breakthrough.
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Thinking of Steph. Keep the focus.
Thank you for the updates and for those of you who have been able to visit and share details with us.
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First I've read of the great news. Progress!!!!! :headbang:
Hoping for more of the same real soon.
YOU GO GIRL!!!!!!!!!!!!!!
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Time for a miracle recovery.
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Hi Steph - My family went to mass today for Mother's Day. We all said a prayer for you to come to a full recovery! I could feel God was listening.
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I got word today that Stephanie's doctors are very happy with the way the treatments are going they are seeing far fewer seizures now. they will continue the electroshock treatments tomorrow and daily as necessary until further improvement is seen. Tomorrow is her 34th birthday. Thanks for all again so much for your concerns your prayers and your wishes for her well being.
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Thank you Jeff and anyone else bringing us updates. I think about Steph every single day. We've only hung a couple times but she is my sister in NCKA. My daughter asks about her very often, though they have not yet met. I have a happy, smiling picture of her posted on the wall next to my desk. She is in our thoughts. I just can't wait for the opportunity to see her again in the flesh, while we are sharing fresh crab and beer. Come back to us Steph!! We are ready for you.
Deva
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Happy birthday, Steph! I know you'd rather be outdoors... We are waiting for ya!
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Happy birthday Steph!!
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Happy birthday, Steph! I know you'd rather be outdoors... We are waiting for ya!
This ^
Time for a birthday miracle
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Happy birthday Steph! :occasion13:
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Happy Birthday Steph! Don't worry about your birthday wish, I think we can collectively make it for you. :occasion15:
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Happy Birthday StephL! :occasion18: I'll make a wish for you, to be back :camp :fish4 :yak :chug and :fishing1 soon!
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Happy Birthday Steph! Hope you will see this post very soon! Miss seeing you and hope everything starts getting better for you quickly!
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Happy Birthday to you
Happy Birthday to you
Happy Birthday dear Stephanieeeee
Happy Birthday to you
Hey Steph we're all waiting patiently for you to come and party with us.
You're in my prayers Steph
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Happy B'day Steph. Good vibes and prayers from the Great State of Texas! Get better so yuou can school all these guys in the art of kayak fishing
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happy birthday Steph!! :smt006 Come partay!!
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happy, happy birthday! we're all here praying for ya!!! :occasion13: :occasion15:
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Happy Birthday Steph! Wishing you a full recovery...and a 30+ling! :occasion13:
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Happy Birthday Steph,
Thanks Jeff for keeping us informed,,,
This sounds like Good News ,,,,
Keep Fighting Steph,,, you have way too much to do and too many people that want to do it with you,,,
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Happy b day to you!!!
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Happy Birthday and Tight Lines Steph!
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Happy Birthday Steph,
Thanks Jeff for keeping us informed,,,
This sounds like Good News ,,,,
Keep Fighting Steph,,, you have way too much to do and too many people that want to do it with you,,,
Yep, bump this! Happy Bday Steph.
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Happy Birthday Steph!
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Happy Birthday buddy!!
:smt008
:smt006
Sincerely,
Jim
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Feliz Cumpleanos Steph! :occasion18:
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Happy Birthday Steph!
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happy birthday steph!
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Happy birthday bud!
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Happy birthday Steph!!!
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Happy Birthday, Steph!!! :occasion13: :occasion15: :occasion16: :occasion18: :occasion13:
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Happy Birthday Lady!!! :occasion15:
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I went to see Stephie today for her birthday.. She got her 4th ect treatment this morning. When I was there, about every 10 mins, She seemed to be somewhat awakening for just a few seconds. her eyes would open slowly. And I'd say happy birthday. I'm very sure I got a couple smiles and even a semi chuckle albeit ever so brief before she faded back out. So very hard to see my friend this way. So thankful some progress is being made.
I took the nurses some cupcakes so they could celebrate too. They are all so nice to her and treat her very welll. ( cute ones too!!) The drs are pleased that the ect is progressively "unlocking" the parts of her brain so that now the drugs can get in and suppress the seizures. She is still having them but they are more organized now. She has been having more prominent facial tweets. Which is also expected. She will have another ect treatment tomorrow. After that, the judge has to give an extension to the order for more to be done. As always Thanks for your prayers for Stephanie.
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Happy Birthday Steph!
Thanks Jeff for keeping us updated, very glad to hear that she is making progress.
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Happy Birthday, Steph! There's still time to make it up to GS! :smt003
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Stephanie, I've never had the pleasure of meeting you, but I've been checking in on this thread and keeping you in my thoughts. Sending you positive vibes on your birthday. Your progress is encouraging, you are clearly one strong individual.
-Evan
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C'mon Steph. I have a cake here for ya right now. Blow out the candles.
Happy Birthday!!!!!!!!
May all your (and our) wishes come true.
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Happy Bday Steph ! You will be on the the water in no time ! :smt006
Alex
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Happy Birthday Steph!!!!!!!!
Come out to play, you can teach Amy how to catch mud marlins :)
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Happy birthday Steph! Get well soon. Shuland won't be the same without you.
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My thoughts and positive energy are always on Steph now.
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You got this girl.
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Steph will be on the minds and in the hearts of many at Shelter Cove this weekend.
We will take some time to focus our energies and prayer for a full recovery.
I hope you and I will fish together this year, Steph! :smt001
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Eric, I will personally sponsor that trip! She has talked about doing a river trip for some time now...
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Stephie got her 5th treatment today... they are going to switch up her meds now and make adjustments to hopefully get it into areas of her brain that it couldn't get to before...
Also I want to mention that many of the updates I relay to you come from Tracy who has been just as instrumental if not more that I have been in getting information and disseminating it. Thank you Tracy (SCTRACE) for sharing the burden of this often depressing news.... one day we will have great news to share til then.. ... just keep praying people... as always... Thank you
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thanks again both you guys. ALL you guys. I'm still praying.
Bushy
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Hey Eric,
Can we take some time this weekend at Shelter Cove/GS11 to focus positive, healing energy together for Steph's recovery and getting better?
Aloha,
Da Bruddah
Michael
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Hey Eric,
Can we take some time this weekend at Shelter Cove/GS11 to focus positive, healing energy together for Steph's recovery and getting better?
Aloha,
Da Bruddah
Michael
We will do that, Michael - for sure.
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I got a message from Steph's dad yesterday. They wheeled her around on her first "stroll" through ICU in 44 days. She is waking up, but still having seizures.
-Allen
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Encouraging news. Thanks for the update Allen.
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That's wonderful news! Jim and I are thinking about her daily.
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AWESOME!!!!!!!!!!!
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Glad to hear she is out of bed. Now the seizures need to stop so she can get home.
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That's definitely some positive news.
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Glad to hear she is out of bed. Now the seizures need to stop so she can get home.
Not quite out of bed yet, they wheeled the bed around so she could get some scenery.
-Allen
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From our family to yours, lots of love ❤️
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Awesome news Allen, thanks for sharing.
Jedmo
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Thanks fort he update and Steph as always I am praying for you.
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5/21: I am very happy to report that Stephanie is doing so much better today she has come out of the coma and the seizures have stopped as of 9:15 am today. She is getting her meds reduced now. And there were no other drugs added. she wants to speak so badly and tried but she doesn't have a voice box really and has the trachea still and the meds are still interrupting her motor skills. She has a chart of words that her she can point to but she isn't quite there yet. Her versed is at 23 now and should be 20 by morning. So more time is the next step. But it appears the electroshock therapy has worked. She may get a 6th treatment. They are not sure yet. Thank you to all my friends that have prayed for and shown support. Please do not stop. It's working !
She was so excited to see the Worlds biggest get well card (10'x2.5') and a huge and beautifully polished red abalone shell from all of her friends and supporters from SHELTER COVE. SHULAND , NOR CAL KAYAK ANGLERS , Lost coast kayak Anglers, North west kayak anglers. And all up and down The west coast and all of shuland I will post pic tomorrow it was a long day ❤️🙏🏼❤️🙏🏼😴
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This is amazing! Thank you for great news!
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Great to hear! Lot's of positive energy sent her way from everyone at GS11! Get better Steph, your a fighter!
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Awesome news! Thanks for that update IROE, and thank you for visiting her so soon after the festivities. Hooray Steph!!
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:hello2: :hello2: :wav: :smt006 Go Stephie, Go Stephie, Go Stephie, Go Stephie!!!! :blob5: :blob5:
Bushy
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This is great news!
Looking forward to meeting and fishing with you in the future Steph.
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This is heartwarming news. I am happy for you Steph!!!
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Great news indeed! I hope her full recovery continues! Go steph!!!
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So awesome! Thank you, Jeff!
Go, Steph! :smt001
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Great news and keep getting better Steph
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Great news! Thanks for the update Jeff. :smt006
-Kiel
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Pics
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Such amazing news. Brought a tear to my eye.
Still
Praying for you Steph
#StephKillsit
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This is incredible news! There are no words that can describe how great and wonderful it is to have you awake and responding to the family and friends around you. Keep it up and you will be back to out fishing lots of us soon!!!
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Pics
It's so nice to see her awake and smiling!
Keep up the fight, girly!!
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Thanks for the update & pictures Jeff. What a wonderful news! More prayers & good vibes sent.
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i have a big lump in my throat.......this is GREAT NEWS to read!!
She looks a whole lot better with her eyes open. Keep the love flowing!!! It's WORKING!!!
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You go, girl!
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Sweet :smt002
Great news!
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Great news! Go Steph!
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Keep it up Steph!!! praying for you sorry I didn't sign the big card but will next time I see you.
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Wow, Pictures are so touching. Get better soon Steph!
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Eh NCKA Bruddahs,
That is such great news to hear that Steph is on her way back to recovering and getting better. The NCKA community sent Steph a lot of great joy, prayers and the special bond that we all share at the GS 11. One of our NCKA Bruddahs took video of the GS 11 crowd doing the wave and hooting it up for Steph on Saturday night. Can you post the video? Would like to re-live the GS 11 Wave for Steph.
Mahalo,
Da Bruddah
Michael Y.
Oakalnd, CA
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Absolutely fantastic news, this has really brightened my morning!
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:smt006 :smt006 :smt006
One step at a time.... We miss you buddy
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awesome news...keep the fight going Steph!!
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So happy to hear the good news! Recover quickly! Go Go Steph! :smt006
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Thank you Jeff for all you have done. This news is what we've all benn hoping and praying for. So fucking awesome!!!
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Go Steph!!!!!! :smt001 :smt006
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Great news, kick it in the butt. Love and prayers sent your way. :smt007
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Super happy to read this news. On the road to recovery !
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Awesome news guys. Keep it up steph we are all behind you! :blob8: :blob9: :blob8: :blob9: :blob8:
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Steph,
I don't know you yet, but I plan on it.
Saturday I helped ( lingading )Herb back on his kayak.
He was exhausted and had lost the strength to get back on his yak.
By tacking my hand and getting the encouragement from Keith ( lost anchovy) ,and Alex ( bulldog) to kick and keep kicking we got him on his boat.
You can kick this, we are all reaching out to grab your hand now take it and kick hard and your going to be on the water with us very soon.
Your doing great and we're all here for you.
And I look forward to seeing you very soon.
-4est
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F*ck yea! Welcome back!
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Bolinas ...
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STEPH !!!!!
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That news does my Heart good!
Keep fighting Steph!!
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i have a big lump in my throat.......this is GREAT NEWS to read!!
She looks a whole lot better with her eyes open. Keep the love flowing!!! It's WORKING!!!
Ditto. We are all thrilled that you are such a fighter, keep up that great, hard work!! Tightline!!!
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So happy to hear about the progress. You have so many people that care about you. It was evident at Shelter Cove that you are missed. I can't wait to fish with you again.
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I am convinced that our collective prayers have helped. Stay with her.
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I got an Update yesterday from SkipTrace :smt005 who visited with Stephie after a long day of work... It sounds about the same as Sunday but with small improvements each day! Trace told here to get up, its time to fish.. :fishing2 :fishing1 and she got excited... :bounce:. :smt007 keep up the positive vibe friends! :smt006 thanks your all your love and support!
If anyone is interested in joining....I plan to visit Friday around 2pm for a little while before the SF Giants/kayakbbq/Mc Covey Cove/ATT Park/fireworks show.... Shenanigans on the water!
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From Stephanie's Dad.:Today, Steph was fitted with a speaking valve to her trach by a speech therapist. We were amazed to hear her repeat sounds, and to say her first word...which was "no". She is able to follow commands and to hum. She was asked what kind of music she wanted to listen to, and she said. " Blink 182". The therapist repeated Blink 182 and Steph nodded several times. Her nurse looked it up on the computer and played it. Steph let out a big smile and seemed to mouth the lyrics to the song as it was playing.I h
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From Stephanie's Dad.:Today, Steph was fitted with a speaking valve to her trach by a speech therapist. We were amazed to hear her repeat sounds, and to say her first word...which was "no". She is able to follow commands and to hum. She was asked what kind of music she wanted to listen to, and she said. " Blink 182". The therapist repeated Blink 182 and Steph nodded several times. Her nurse looked it up on the computer and played it. Steph let out a big smile and seemed to mouth the lyrics to the song as it was playing.I h
:smt001
Thank you, Jeff.
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Great to hear continuing good news . Miss ya Steph ! :smt001
Alex
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Fantastic to hear. Keep up the fight Steph, you got this beat. :smt006
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Getting better every day!!!!! :headbang:
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Just plain freaking awesome news!!! Keep up the fight Steph, there is an army of support behind you.
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So good to hear the news.
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From Stephanie's Dad.:Today, Steph was fitted with a speaking valve to her trach by a speech therapist. We were amazed to hear her repeat sounds, and to say her first word...which was "no". She is able to follow commands and to hum. She was asked what kind of music she wanted to listen to, and she said. " Blink 182". The therapist repeated Blink 182 and Steph nodded several times. Her nurse looked it up on the computer and played it. Steph let out a big smile and seemed to mouth the lyrics to the song as it was playing.I h
Hell yeah!!
:smt008
Sincerely,
Jim
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That sounds huge. I am so happy to hear this!
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Keep the great news coming!!!
Thanks Jeff & Tracey for the updates.
Keep fighting the fight Steph!
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awesome news...slowly but surely is coming out of it :smt007 keep it up!!
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Look who is smiling today. 🤗😜👍👍🙏🏼
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Yea, that grin, she knows we're following ... welcome back! 'hope you are having a speedy recovery!
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Pic Of The YEAR!!!!!!!!!!! :smt001 good to see her awake! :smt007
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Wow, the smile is back! :smt003 Keep it up Steph!!!
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Yeah !!! That's the smile we all know !!! You got this Steph !!!
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Hell yeah!!!!!
:smt008
:smt006
Sincerely,
Jim
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Oh yeah! Now that is what I'm talking about! :smt026 :smt026 :smt026
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That's the face I remember! Great to see that smile. She's gonna be fishing again soon!
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:smt007
Thanks for coming back to us Steph!
:groupwave :groupwave :groupwave
Wait a second I know why you're smiling......
Did Dennis sneak you some Old #7? :smt001
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THAT'S WHAT I'M TALKIN' ABOUT!!!!!!!!!!!
HELL YEA!!!!!!!!!!!!!!!
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So glad to see that smile!
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I'm crying! Happy tears! So wonderful!
Sent from my XT1585 using Tapatalk
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Soooo AWESOME!!
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Nice to see. The prayers have helped.
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Wow, incredible. This is really great news.
I am so happy for her and her family. :smt001
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That's a sweet smile :)
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What he said :smt039
Bushy
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Answered prayers, so awesome !!!!!!!
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This is the most precious and beautiful thing!!!
:smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007 :smt006 :smt006 :smt006 :smt006 :smt006 :smt007 :smt007 :smt007 :smt007 :smt007 :smt007
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WHOAA!!! Great to see that beautiful smile again! Thanks for all the updates!
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I needed some good news! Now, I'm smiling toooooo
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It is awesome to see your smile again. Keep on kicking this things butt!!!
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So Awesome!!! Happy in Humboldt! :smt001
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Fucking Goddamm Hallelujiah!!!!
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Fucking Goddamm Hallelujiah!!!!
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Now that's more like it! Wooooohooooooo! :smt006
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Love that smile!!! :smt111
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Awesome!!!! :wav: :wav:
-Kiel
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Wow! Good to see you Steph!
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SWEET!!!
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That was the most incredible pic EVER!!!! So awesome to have you back and smiling Steph.
Welcome back Steph!!!
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Holy crap, Steph. You had us worried for a minute there. Don't do that again, please.
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AWESOME!!! :smt006 :smt006 :smt006
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She is coming back! I was able to visit for a while today. She was definitely excited. She was trying so hard to talk that her mother, Len and I had to ask her to relax. Talking can't be easy with that thing in her throat. The sparkle she gets and her happy smile are definitely back Her speech patterns are repetitive. She is grasping concepts and holding on to them hard. She said on her own that it seems like its been a bad dream. I mentioned the other people that have visited. She said, I like Tracy SC. I like Jeff. Later in the conversation, she had trouble remembering Jeff. Then when Tracy was mentioned, her mind made the connection and her memory and fondness for Jeff returned. This is how it should be. We all trigger memory via associations. I mentioned where I was going fishing this weekend. She definitely knew Pescadero and Bean and they brought her special smile out. She said, I Love the Bean. I told her that when things clear up more, she is going to be mad she missed Turkey season. She definitely understood that. She said, I love hunting.
Her mother likes to take pictures so I posed for this one.
Jeff was coming to visit shortly after I left, so I'm sure he will have more to add.
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LRM- This is probably the best picture I have ever seen of you!! And Steph looks better and better every day!
Let's keep praying for speedy and complete recovery.
Bushy
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Visited with Stephanie yesterday before the giants game. They put her in the Nuro chair and wheeled her to the Goldengate bridge window she looked out and she would hardly stop talking the entire time. it took a while for her to recognize me at first but then she would not shut up I was telling her all everyone's names and comments and she was repeating them and kicking her legs like the therapy nurse wanted her to do.
They hooked her up to the EEG again to check for seizures all night last night and all this morning and did not see any so they removed them. her doctor say that she is continuing to improve it will take time for her motor skills and speech to come back to normal. from what I witnessed yesterday her long-term memory is very very good and her short-term memory is not so well, as it took her a while to remember me as well as others. But once She made the association she would smile and say iLike "so and so". I told her SHULAND misses her and she says I love SHULAND. 👍🙏🏼😢❤️
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Thanks Jeff,
This is Awesome News!!!! :white :white :white :white :white :white :white :white :white
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Great news Jeff. It sounds like it won't be too long before Steph is fishing, gathering, and hunting again.
Sent from my SM-G930V using Tapatalk
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Glad to hear of the progress. Get well soon Steph.
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That is about the best thing going worldwide right now. Amazing. Thank you Jeff
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Visited with Stephanie yesterday before the giants game. They put her in the Nuro chair and wheeled her to the Goldengate bridge window she looked out and she would hardly stop talking the entire time. it took a while for her to recognize me at first but then she would not shut up I was telling her all everyone's names and comments and she was repeating them and kicking her legs like the therapy nurse wanted her to do.
They hooked her up to the EEG again to check for seizures all night last night and all this morning and did not see any so they removed them. her doctor say that she is continuing to improve it will take time for her motor skills and speech to come back to normal. from what I witnessed yesterday her long-term memory is very very good and her short-term memory is not so well, as it took her a while to remember me as well as others. But once She made the association she would smile and say iLike "so and so". I told her SHULAND misses her and she says I love SHULAND. 👍🙏🏼😢❤️
Wow and beautiful news...what a road...Steph, these crawdad cages need to get wet...constantly praying for a full recovery... :smt006
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This is soooooo freakin awesome!!!
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Thanks for conveying the great news to us Jeff. More good vibes sending to Steph...
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Visited with Stephanie yesterday before the giants game. They put her in the Nuro chair and wheeled her to the Goldengate bridge window she looked out and she would hardly stop talking the entire time. it took a while for her to recognize me at first but then she would not shut up I was telling her all everyone's names and comments and she was repeating them and kicking her legs like the therapy nurse wanted her to do.
They hooked her up to the EEG again to check for seizures all night last night and all this morning and did not see any so they removed them. her doctor say that she is continuing to improve it will take time for her motor skills and speech to come back to normal. from what I witnessed yesterday her long-term memory is very very good and her short-term memory is not so well, as it took her a while to remember me as well as others. But once She made the association she would smile and say iLike "so and so". I told her SHULAND misses her and she says I love SHULAND. 👍🙏🏼😢❤️
Thank you for the update. This is fantastic news!
Aaron
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Many thanks Jeff for bringing us such good news.
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Wow, what an amazing turn, so glad to hear of this!!! Keep fighting Steph, you'll be back on the water in no time!
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Wow! What a huge development! Stay strong Stephanie! You have so many people who love you.
Sent from my XT1585 using Tapatalk
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Saw Stephanie today she's doing much better. her voice is improving quite a bit. She was coherent responsive talkative alert. and her pronunciation is really good thru her voice thingy in her trachea she was starting to kick her feet more. They said she stood earlier in the day. She is off all the seizure meds. Now and is in withdraw so to speak. She had her first real meal. And she ate that all up!! Still she's having trouble with her memory as far as who people are and things like that. She asked if I was single and where I live and what I do. She was very excited know that I am single and design robots. And live in San Jose. She noted that "single... that's important. The rest. Meh." Lmao later she said San Jose is far! ( glad she gets that) 😂😂
she forgot that she is my fishing buddy 🎣🚣🏼♀️🤦♂️but she knows she has 2 kayaks. ❤️She doesn't remember me being there before. 😢Thinks I am the first to come see her. I told her the other people that visited and she didn't remember. 😢she became so concerned about the numbers on the monitor they had to shut it off. She is still scared but I told her she I told her how proud we all are and NCKA too for how she fought to be here with us and she said i don't Remember but I love Ncka. !! She has a hellova grip now. We just need to get the rest of her moving. He nurses say she is doing as expected she could be out of ICU next week ? Maybe? Thanks again for everyone's prayers and thought for stephkillsit
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awesome news...prayers for a speedy recovery :) :smt007
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Great news that Steph is awake and coherent. Steph, I hope you have a speedy recovery and come back to fish with us!
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Nice! She'll have this thing licked in no time!
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Great news! It just gets better every day, thank goodness. Keep it up Steph!
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:wav:
Great news. Wishing Steph a speedy recovery!
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Amen!
Sent from my iPhone using Tapatalk
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Wow! Such a positive turn! Yay Steph...
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Awesome.
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Thank you so much for this great update, Jeff! So stoked to hear that Steph is progressing and things are really looking up.
Strength, Steph! :smt001
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Shit that is incredible!!!
Seems like if I had amnesia, that would be the most important things to remember:
NCKA, 2 kayaks!!
I would say that looks like a great sign on the road the recovery.
Next, she will say, take me out on the water!!!
Mahalo nui loa, Jeff for being Steph's bedside coach and for being keeping us in the loop with her progress!!!
You got a lot of good karma coming!!!
Time to go fishing for you.
da Bruddah
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Hey Jeff,
Do you really design robots!
da Bruddah
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Hey Jeff, are you single?
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What a great friend you are Iroe!!
Latest progress is inspiring....
Bushy
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Great signs of recovery. Thanks for updating us all.
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LMAO, :smt044 YOU GUYS CRACK ME UP... YES... HETERO, SINGLE, ROBOT DESIGNER... I CAN GUARANTEE YOU THAT YOUR MICROCHIP TOUCHED MY ROBOT... :smt008 :smt007
Side note:
I am only doing for Stephanie what I would hope my friends would do for me if I were in her situation :smt010. :smt008 Only because Iroelikethat :smt006
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Hey Jeff, are you single?
Hey Bushy.
This is a fishing site not a dating site !! Better delete that last post before your wife gets jealous. :smt003
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Hey Jeff, are you single?
Hey Bushy.
This is a fishing site not a dating site !! Better delete that last post before your wife gets jealous. :smt003
You mean before Sansano gets jealous!
Bouché
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Thats AWESOME!!!
About Steph you dirty f%%kers
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Thats AWESOME!!!
About Steph you dirty f%%kers
True Dat. But we've got to give Steph something to laugh about when she reads this thread. They say laughter is the best medicine.
Keep on pushing through Steph !!!
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Stephie is out of ICU! 🙏🏼❤️🙏🏼❤️🙏🏼❤️🙏🏼❤️ She is doing better every day. Thanks for all your support thru these times. She has a ways to go but we are all hopeful for a full recovery in due time. Stephkillsit! 👍
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Great news Jeff. She's gonna be fishing again soon!
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Awesome news! :smt006
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What a wonderful news!!! :white
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Baby steps... Post on ncka, attend a fnc, then back on the water.
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Just returned from a 5 day trip out of state.
GREAT news to come home to!
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ATTEN... STEPHIE IS NOW IN ROOM L828 AS SHE IS NO LONGER IN "ACUTE CARE" WOO HOO!
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That's incredible! It gives hope when so many prayers and positive thoughts are given. So much pain suffering to good people these days.
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Thanks for the update, Jeff!!!!
that is great news!!!
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Awesome news!
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WOO HOO!
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I got my birthday wish yesterday. She remembered me!!!! Woo hoo!!! :smt044
She sat in a chair with help but she ate all by herself. So happy with her progress. Best birthday ever!
Stephanie is asking for people to come and visit! She will not be at UCSF (505 Parnasus, SF CA room L868)much longer, they will soon more her to kaiser in Vallejo for her PT.
She is still suffering bouts of delusions and memory loss.. (not knowing why she is there and what has happened to her.. she still worries about dying and is scared... This is short lived as she then gets happy and is very talkative... she still has a very hard time remembering a lot of things... like..what "NCKA" is and what color my car is... but she was but she still remembers she has 2 kayaks and cant wait to be hobie-ing again... she also remembered that I live in San Jose and that is very far...
lmao
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awesome, she is doing better and better each day!! Keep it up Steph :smt006 :smt006
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Thanks for the continued updates. So stoked to see Steph's smile!!
Keep kicking ass, Steph!! :smt001
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Incredible! Keep making progress, Steph. :smt001
Thanks for the update, Jeff. Just don't keep putting your face too close to her - you don't want to startle her too much just yet. :smt003
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Beyond amazing!! I'm sure she won't remember me but please tell her I said hi and and that my whole family is pulling for her. Get well Steph!! Can't wait to go murderize some poor defenseless ocean creatures with you again soon.
Deva
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So glad you are feeling better Steph ! :smt001 When you are feeling a little down, just remember there are a TON of people who Love and Miss you. Give it some time. Love ya " StephKillsit! ". " The Bulldog " . :smt003
Thanks for visiting Steph and including us all in your visits Jeff . :smt006
Alex
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So glad to see that smile. Please post up info about visiting when she is in Vallejo.
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so grateful for your continued recovery Steph. Keep it up.
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Great to see her continued recovery !
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Good on you Jeff and others who visited her and kept the rest of us in the loop...
Great seeing her pic...that warm smile is a window into her soul..
Lots of good people in this ncka community...the outpouring of love and concern for a fellow member truly makes me proud to be a part of ncka
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:smt006 HEY Y'ALL!
STEPHANIE WILL BE MOVED TO TODAY TO VALLEJO!!
THAT RIGHT I SAID....
"VALLEJO BITCH, THE 707 HOE, YOU KNOW THE V-TOWN V-TOWN" :smt044
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Yes!!!
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:smt006 HEY Y'ALL!
STEPHANIE WILL BE MOVED TO TODAY TO VALLEJO!!
THAT RIGHT I SAID....
"VALLEJO BITCH, THE 707 HOE, YOU KNOW THE V-TOWN V-TOWN" :smt044
That's N2Deep for me. :smt044
great news!
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:smt006 HEY GUYS! STEPHANIE HAS BEEN MOVED TO VALLEJO. :smt044
SHE IS IN ROOM H3027 GO AND SEE HER!
975 Sereno Drive
Vallejo, CA 94589
Phone number (707) 651-1000
INITIAL REPORTS ARE THAT IS GHETTO AS FUCK (MORE SO THAN SF :jawdrop)?....
SO ANYWAY DON'T BE LEAVING SHIT IN YOUR CARS.... :smt013 :smt066 :smt067 :smt068 :smt070 :smt071
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I don't know Steph but have been following her progress and glad to see her progressing
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I don't know Steph but have been following her progress and glad to see her progressing
Sent from my SM-G920T1 using Tapatalk
Here Here!!
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I am really disappointed that you guys have not gone to the hospital in vallejo to see Stephanie..
she really needs the support of friends right now..please pay her a visit if you are in the area or passing by!
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Jeff, I'll try and get over there with Hobie-Dave when we get back to California.
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I worked this weekend and went to Roger Waters concert but I plan to go in a couple of hours around 2 pm today.
Luis
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THANKS MARTIN AND LUIS FOR MAKING THE TIME! :-)
I KNOW YOU GUYS ARE BUSY...
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Hi All!
Wanted to let you know I (and Pondpoacher) have been visiting Steph at the rehab/hospital in Vallejo where she will be for at least 2 weeks. She is awake, talking without the trach, eating by herself (semi-assisted for opening packages, grabbing items), with a little stutter/slurred speech. She is not mobile/not able to stand up, but getting regular physical and speech therapy.
Visitors are super welcome! I know it’s a haul for many to Vallejo but Saturday or Sunday mornings are perfect commute hours! Generally speaking, mid week, she has physical therapy throughout the day, but free after 3pm, eats around 6pm, and sleeps around 9pm.
Kaiser Vallejo
975 Sereno Dr
Vallejo, CA 94589
Rm H3027
(Main Hospital Bldg, 3rd Floor)
She doesn’t recognize everyone at first, but if she has seen you recently, she remembers that, and also, if she has seen pictures of you recently, she may remember you when you visit. It seems good to just let her talk, not ask too many questions (she doesn’t need to be ‘quizzed’) but telling her a story about a recent fishing experience, or a story of a trip you had with her is cool. Showing her a few pictures and asking her “Do you know remember who that is?” or “Do you remember what kind of fish this is?” seemed to trigger her memory a bit. Just visiting and talking to her is great! You will see
She doesn’t remember too much about her life except for what her parents and friends have told her since she has been awake, but she doesn’t seem too frustrated in this regard. She says she is a vegetarian and a germaphobe now, but is still figuring out to what level. We reminded her of her freezer and she said she would give all of the meat away, and thinks she may be all CPR now with fish. So it’s these things, while entertaining, we don’t want to be like “NO, that’s not you!” or “That’s crazy talk!” The docs say her memory should get better with time (to what degree-TBD).
Her parents/brother continue to be by her side almost 24hrs/day, sometimes sleeping at the facility. Her health insurance coverage, so far, has been good. I spoke with Neil, her Dad, just this past Sunday and they do not want any additional funds at this time with so much still unknown, but are very appreciative that we keep asking. Her brother also has a GoFundMe account that has raised a bunch of money for the family as well.
Thanks everyone!
Tracey (sctrace)
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:smt008 Great news! :smt006
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Thanks for the update Tracey, and for checking in with the family about $$ needs.
Will do my best to get up there to see her as soon as I can!!
:smt006
Sincerely,
Jim
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Steph still remembers that #ANDYISADICK
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Steph still remembers that #ANDYISADICK
At least I don't like to eat it. :smt005
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Steph still remembers that #ANDYISADICK
That is what we talked about all day.
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Steph still remembers that #ANDYISADICK
At least I don't like to eat it. :smt005
:smt005 :smt005 :smt005 :smt005 :smt005 :smt005
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thanks for the update Trace!
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We should all keep going to visit her, it keeps her spirit up and makes her very happy and you will have fun, Craig you should go soon because as far as she remembers she likes Obama. Bring some pictures, she remembered seeing my drysuit colors, when i came in the room she look at me and said " i remember your face, what's your name?" She did not remember untill i said scubaluis then she never forgot that. I showed some pics from my phone and talk for about an hour.
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Some pics(https://uploads.tapatalk-cdn.com/20170614/53d7e6b68418d561fd0f66825fccb15e.jpg)(https://uploads.tapatalk-cdn.com/20170614/eba8ea4c6d49e99c5726f224b4adf676.jpg)
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Tracey (sctrace)
Thank you so much for this update, Trace.
So stoked for the progress and the outlook.
:smt001
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A few photo moments! She LOVED her GS tshirt from Eric and wanted to wear it right away. Aaron showed her a pic of Eric and she then remembered then that she was told he gave her the abalone shell too :smt007
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Its so nice to see that beautiful smile again.
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Way to go Steph!
Aaron
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great news keep fighting
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Soooo glad you are feeling better Steph. See if they can include something like this for your rehab ? We need your reeling hand in good shape as well. Big hug Girl and see you soon. :smt001 :smt006
https://youtu.be/nWeSHLh3PY4
Alex ( Bulldog ! )
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Planning to go visit with Steph after the ARW event tomorrow. Anyone else want to join?
-Allen
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Planning to go visit with Steph after the ARW event tomorrow. Anyone else want to join?
-Allen
I do!!!
Bushy
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Naoaki, Ash, Luis and I visited Steph yesterday. She was full of smiles and still has a great sense of humor. She remembered Jeff without even mentioning is name and talked about his robot making skills, she joked about Andy Morales ;), and told us how eager she was to get back on the water .
While we were there one of her nurses told us he kayak fished and Steph was quick to tell him to join NCKA. It looks like it will be a long road for Steph, but I know she will be on the water with us soon.
If anyone can make time in their day, Steph would love it for you to come and visit her. It was hard leaving as you could see she enjoyed having visitors.
We are all thinking of you Steph!
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You guys must have visited after we left. Right on! I encourage everyone to make some time and go visit our girl Steph. It really helps, and it is the one thing she kept asking for. Come on people, let's do this!
-Allen
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Yes. She has memory difficulty and motor difficulty, but one thing she returned to over and over again, almost a plea, was "Tell everyone to come and visit me please. Even if they don't know me come and visit. it makes it better. If I cry it's tears of joy. This is a miracle in the making."
OMG. Her mom and dad are awesome. They are "us."
Steph recognized Allen when we arrived from across the room. She had a little stutter remembering me, Bushy, but before we left, she remembered my last name on her own. Impressive. She's on the mend, she's only been awake after the jump start for like 10 days or so.
Most comforting is her sense of humor is already back at 100%. Laughing at jokes (getting them), telling jokes, making Tagalog fun at her mom. Very impish and so sweet.....
Bushy
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Hi Steph,
Here's one of your happy faces!
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a short msg to you from Stephanie
my first attempt at posting a 5 min go pro edit.... :smt003
https://youtu.be/g1oNgw-Bm80 (https://youtu.be/g1oNgw-Bm80)
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YAY!! Looking great Steph!
This is great news to have when returning from Yellowstone.
I'll try to stop by this week or next when I head over to San Rafael for work.
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Great video Jeff!!! she's getting closer and closer each day! Keep up the positive EVERYTHING Steph!!
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Keep up the good work Steph. We all Love you as well !!!
Alex
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Than you so much for posting that Jeff.
Hillary Clinton as pres...YOU WISH!!!!!! (now)
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awesome. Thank you Jeff for the update and video. You're doing great Steph...you go GIRL!!
If i'm ever in the neighborhood, I'll stop in and visit
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That's great! Keep up the good work. Thanks for posting jeff.
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It's so nice to see you up and about! Before you know it you'll be back on the water. Love you girly!
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Yay Steph! It makes all us NCKAer's super happy to see our sister get better and better every day! Mabutay!
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Looking good. Keep up the recovering. :smt001
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Hobie-Dave and I went to see Steph today. She is very alert and incredibly grateful for visits from friends. We shared a few pictures and memories of fishing and NCKA events. She seems to be getting stronger by the day and looks forward to fishing with her NCKA buddies again soon.
Martin
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Steph. Your fight is an inspiration to us. It is so good to see
you talking and exercising. Life will be good again.
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I've learned a thing or 2 since the last post!
you'll like this one!
https://youtu.be/dgGdja-hX7A (https://youtu.be/dgGdja-hX7A)
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You're a good guy Jeff (except for the Chump Train) :smt044
Keep the vids coming.
Keep working Steph.
And as far as the veggie thing; there's always mushroom hunting
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Dry bones and I are visiting Steph right now. She is such a joy to see and is in good spirits. She says it makes her happy when people visit her so if you get the chance to come out to see her, I highly recommend it. She is in therapy right now using the walker and is getting better every day. She says she remembers us from Albion and Gimme Shelter, which makes me happy. Thank you to everyone who kept us informed on her progress.
Brian
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You're a good guy Jeff (except for the Chump Train) :smt044
Keep the vids coming.
Keep working Steph.
And as far as the veggie thing; there's always mushroom hunting
:jawdrop Postal workers!! :smt075 :smt067 smh... actually steph' dad is one... but hes retired now...!
thanks TOTE
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haha Jeff! She stopped being a Vegatation three weeks ago. She's a mammal now, and a carnivore though she won't admit it!!
Thanks for mentioning us I'm so glad she is remembering more and more!!!!!
Bushy
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So damn happy to see this!!
:smt007
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Thanks for that update Brian and Steve. So glad she remembers you guys. !! She had a lil trouble with my last name and call me Kevin a few times. Lol.
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Hey guys! :smt006 Stephanie is doing better and better every day... :toothy12:
She still having trouble remembering... :smt012
Please do stop by a Kaiser in Vallejo if you have not already done so..
(THANKS TO THOSE THAT HAVE DONE SO ALREADY)
SHE IS ASKING FOR PEOPLE TO COME AND VISIT!!!
PLEASE DO COME AND SHOW YOUR SUPPORT FOR HER AND GIVE HER SOME ENCOURAGEMENT.
Its so much harder for me to visit her from San Jose.. as much as I'd like too i just can't.....
I am relying on you guys to step up! :smt008
THANKS AGAIN- IROE
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Found a little nitch of time to go see "my friend" Steph ,After work on Monday , and man, l'm glad I did! I brought my uke and we got play and sing some songs!(https://uploads.tapatalk-cdn.com/20170627/20b24fb4fe0adaf4238c8f4d0235cd9c.jpg)
Steph told me to tell ncka land that
"She will be back".
Things havn't been easy and there is still more work to do.
She says she loves to have visitors cause
"It's good for my head"
I can see what she's talkin about, her body dosn't work like it used to do, she can get frustrated /emotional...
When we were singin, I could see her workin her memory of the song. That was good! And when she see's people, it works her memory of that relationship and that is good.
So the more visitors she has ,the more her mind gets challenged and that is a step in the right direction for her!(https://uploads.tapatalk-cdn.com/20170627/7318d318001f64c35f3976e88211ff78.jpg)
Stephanie workin a chord it two!
Mom and tha Bro were there as well. Turns out Mom played a little guitar and uke back in the day!!! She played my uke too!
It was fun!
It did our hearts good with that visit, I must do it again...
If ur ever close to Vallejo stop by,
Steph would Luv it!
Sent from my iPhone using Tapatalk
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Found a little nitch of time to go see "my friend" Steph ,After work on Monday , and man, l'm glad I did! I brought my uke and we got play and sing some songs!(https://uploads.tapatalk-cdn.com/20170627/20b24fb4fe0adaf4238c8f4d0235cd9c.jpg)
Steph told me to tell ncka land that
"She will be back".
Things havn't been easy and there is still more work to do.
She says she loves to have visitors cause
"It's good for my head"
I can see what she's talkin about, her body dosn't work like it used to do, she can get frustrated /emotional...
When we were singin, I could see her workin her memory of the song. That was good! And when she see's people, it works her memory of that relationship and that is good.
So the more visitors she has ,the more her mind gets challenged and that is a step in the right direction for her!(https://uploads.tapatalk-cdn.com/20170627/7318d318001f64c35f3976e88211ff78.jpg)
Stephanie workin a chord it two!
Mom and tha Bro were there as well. Turns out Mom played a little guitar and uke back in the day!!! She played my uke too!
It was fun!
It did our hearts good with that visit, I must do it again...
If ur ever close to Vallejo stop by,
Steph would Luv it!
Sent from my iPhone using Tapatalk
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What an awesome report scottymeboy.
As previously posted by my brother Ooter1, we visited Steph on June 21st. She was so happy that we came to visit her. She really enjoys having visitors, and she wanted me to let you all know to stop by and visit with her. It really lifts her spirits.
Traveling from San Jose, we stopped off at Fuddruckers in Concord for lunch (best burger franchise IMHO) and there was a Daiso store next to it. We loaded up on some Japanese snack food to bring to her. She became a vegetarian as of now. She is afraid that her illness was food related, but her father Neil is telling her that the doctors have ruled out food as a cause.
I was talking to Neil about kayaking with her when she is ready. I mentioned that Hobie makes a tandem kayak that the two of them can fish together. I told him I'll keep an eye out if I see one for sale.
Outside in the courtyard there is a car that was made by Henry Kaiser that we posed for pictures. We also posed to give tribute to our man Mooch. Here are some pics:
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Looking good Steph ! Its just a matter of time before you join us in the outdoors. Keep up the good work !
Alex
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I am heading to see Stephanie tomorrow (early am) from san jose if any one want to come with... back by noonish... company welcome...
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I would love to join ya Jeff, Any chance you could pick me up?
Please give her our love and tell her we are waiting for her to join us OTW.
Thanks again for all the updates,
See ya Soon,
;0)
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Only if you are on alameda island somewhere. 😂
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Saw Steph and her Mom yesterday with Sara, and she immediatly recognized Sara and wanted to giver her a hug and talk about NCKA. Once I said i'm AlsHobie she remembered me too and wanted to show off how her therapy has been going by wheeling herself backwards up the ramp in her wheel chair. Says she will be going home with her parents soon, like next week. She would lstill ove as much company as possible, she really enjoys seeing everyone and talking about past hookups. :smt002
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What a way to start the morning.
Hobie Dave and I stopped by to say hi this morning and needless to say, ran into Jeff (Irolllikethat). Was nice to see Steph and was very impressed with her recovery thus far. We had a few laughs and even watched her walk a little before she showed us her and Jeff's dance moves.
She still has a ways to go, and would appreciate anyone coming to visit, but it was good to see how far she has come.
Sorry for not taking pics, but was just glad to spend some time with her.
See ya soon Steph,
;0)
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Stephkillsit is continuing her therapy at home and is getting stronger every day and still vegan. she has memory problems and still forgets a lot ( like the fact that she is now vegan ) I busted her eating this chicken McNugget that her friend brought over! we had a nice visit. With Erik yakhopper and Hobie Dave. She is thankful for everyone's support and visitors. She looks forward to seeing everyone at PIF in Monterey. But forgets 💔😟
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Hoping to visit her next week at her parents place. She's a fighter for sure! Keep it up Steph!!! :smt006
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She is at Her place. Sara has the address thanks bro!!
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My prayers for Her and a good recovery
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Stephanie calls every day and asks if I know who this is? I say it's stephkillsit my kayakfishingbuddy. She proceeds to tell me that she's at home now and I ask her where has been? and she says that she was at Kaiser rehab hospital in Vallejo.
I tell her that was 3 weeks ago. She can't remember. Then she apologizes. And says I can come visit. She gives me her address again. I know where she is I say And I tell her I'll see her real soon. And to get strong so she can get back on a kayak. She says that she's Stephkillsit!! Quite often this happens several times a day. I'm just happy she remembers me at all.
#theroadislongandpainful. 🙏🏼😥
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I hope she will be able to make it to PIF in a couple of weeks. She was suppose to tell you to give me that creel too. :smt003
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She will be there. The creel will not. Lol.
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Any updates, Jeff? I wonder about her often. Sent her messages, haven't heard back.
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actually yes.... thanks for asking... I have an update....
She was doing great till about 2 -3 weeks ago... she had a series of very mild seizures, and was in the hospital 2 days for monitoring.. they upped her dosage of anti seizure meds and put her on restriction again (no boats or off shore events) she needs to be close to getting medical attention if required.. she has been great since... she has a small amount of independence, but is still heavily relying on her family still... she really appreciates all the well wishes and support from everyone here.. and misses all the fun hangouts.... she'll be back soon.... GOD willing.. :-)
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Oh dang!praying for you stil Steph. Get well soon! 🙏🙏🙏
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I know I have not been on much lately but Steph is still on my mind. Got her pic on my wall at work. Hoping to see you on the water sooner than later Steph.
Deva
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Don’t know why it turned my pic. It’s right side up on my phone
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Hope ya come back soon Steph!!!!!
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Hello everyone! I just want to say again thank you for everything that you have done for me! I am currently at a program that is callled Recovery Wellness Center in Antioch. I have been here for almost 2 weeks now, and I like it because it gives my family a break and also I can socialize with other people from all walks of life. I am still recovering and have my ups and downs. I hope to one day be on the ocean again with all of you. It is hard still at this time. I am soo glad to have my family with me through all the years to guide me and for my friends. To believe that I almost died is sad. I am vert grateful to be alive and cherish every moment and second of my life. I wanted to say also. Happy New Years to everyone!! Again thank you for all your support! I love all you!! :smt006 :smt003 :smt001
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It was nice to meet you at the holiday party.
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Get well soon, sis!
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Wishing you a speedy recovery!!
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Good to hear from you. Happy New Year my friend!
Martin
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It is great to hear from you. Can we all assume we will see you at Crabfest again this year? Your beautiful smile always cheers everything and everyone up!
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Love you Steph!
Bushy
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Right on Steph! Glad you are doing well!
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Your my Hero ,,,
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Oh Steph, you are just a ray of sunshine, and we are all lucky to have you in our lives. I saved a couple voicemails from you and was just listening to them the other day. I can't delete them because they still make me laugh out loud and brighten my day when I need it. I appreciate you!! Happy New Year!!!
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Last weekend picture of Steph at Crabfest. Does she look happy? :smt001
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It was so good to see you at Crabfest!
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Ah man, I talked with Steph for a few minutes without knowing it was her! So many new faces for me. Great meeting you!
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Hi guys! Glad I could make it out to Crabfest last year. Unfortuntely I will not be able to make it out to Albion this year because my counselor from the Department of Rehab is threatening to put me in a Group Home if I am not home before dark. All day I have been in my home and I just don't feel like even stepping foot outside in the day, what's that point. My dad even threatened to tell her. i have been to concerts like the Goo Goo Dolls, Dido, and other bars that had live music and did well without drinking alcohol and taking Uber Home but now that's all changed. The lady said this would be FOREVER. She used to teach Anger Management, well seems like she needs to go back to Anger Management..I don't understand why all this now? I'm wide awake. I took a long nap.
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Hi guys! Glad I could make it out to Crabfest last year. Unfortuntely I will not be able to make it out to Albion this year because my counselor from the Department of Rehab is threatening to put me in a Group Home if I am not home before dark. All day I have been in my home and I just don't feel like even stepping foot outside in the day, what's that point. My dad even threatened to tell her. i have been to concerts like the Goo Goo Dolls, Dido, and other bars that had live music and did well without drinking alcohol and taking Uber Home but now that's all changed. The lady said this would be FOREVER. She used to teach Anger Management, well seems like she needs to go back to Anger Management..I don't understand why all this now? I'm wide awake. I took a long nap.
Yay Goo Goo Dolls.. I hope certain freedoms are closer than you can imagine...and least incredible stepping stones of victory...be well... :smt006
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Hey guys I met Mr Bizzy Bone from Bone Thugs N Harmony he sang all his old school songs from E. 1999 Album his buddy AC I met as well and gave me a shirt. I got to hang out with them in the back before the performance and DJ Chillz gave me a ride home since he was also an Uber Driver. How nice, I offered me a water. :)
Bizzy sure was Bizzy.
Anywho..I really want to make it to Albion. What are the dates everyone is going to be there?? When is the big potluck (if any)?? Thanks!
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Holy crap that sounds awesome. Givin up shots to that old double Glock. Good stuff!
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Hey guys I met Mr Bizzy Bone from Bone Thugs N Harmony he sang all his old school songs from E. 1999 Album his buddy AC I met as well and gave me a shirt. I got to hang out with them in the back before the performance and DJ Chillz gave me a ride home since he was also an Uber Driver. How nice, I offered me a water. :)
Bizzy sure was Bizzy.
Anywho..I really want to make it to Albion. What are the dates everyone is going to be there?? When is the big potluck (if any)?? Thanks!
Hey Steph,
Albion Tourney and potluck is Sat August 3rd.
I'm bummed that i can't make it this year.